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Comment by MnM on August 17, 2016 at 10:21am

As of right now Lucinda Ellery Clinics are only in Miami & Beverly Hills. I live in Illinois and went to World Hair Institute for a consultation. They have a system similar to the intralace system. I did not get it because I can still hide my loss, but wanted to know my options in case it gets worse. I believe another member from Illinois also went there and she did order the system. It is expensuve, in the thousands for the piece and then the cost of maintenance. So far Wirld Hair Institute is the only place I have found with something similar. I did go to the Lucinda Ellery website and was able to mark that I would be interred in them opening in Chicago.

Comment by DeniseC on August 17, 2016 at 9:42am

I've had this piece of hair for six months now (the System remains in place on your head for two years before it needs replacing, but the hair that is attached obviously deteriorates, as it receives no nutrients other than through products you put on it). That's longer than I was told it would be, so I am very pleased.

It's definitely faded and is less shiny, but I would expect that.Still looks natural though.

So this morning my own hairdresser (not a personal one you understand! I'm not that rich!) coloured my hair (yes, I need it to cover the grey), plus, for the first time, the hair piece. It's brought back the shine and looks much better, but is slightly different in colour to my own.

Not a problem, as it's nothing major and also next month I am having the hair replaced (at Lucinda Ellory clinic) and they will match to my own hair. But it is useful to know that I don't need to go to them (about 1.5 hours away) to have colour applied.

I am now quite comfortable with the whole thing, and can't imagine being a baldie again (well, not a baldie completely, as I have plenty of hair on my crown - it's just the classic band across my forehead and above my ears that is sadly lacking). It's not cheap and you definitely need to go every six weeks to have it adjusted as your own hair grows and pushes the System up a bit.

But WORTH it!

Denise

Comment by Minter on August 17, 2016 at 8:44am

DeniceC, I finally took a look at the intralace system, I think, that when it comes time, that is what I will do also.  I had thought, other then my hairline that my hair wasn't too bad! But as I have been putting the Clobetasol on every night and lifting up different sections of hair and finally taking a good look at my scalp, I see it is really getting very thin in patches :-(

Oh and I finally have figured out how this comment wall works  :-) , I always thought it was comments made on threads that are posted, but then couldn't figure out why I was not finding these comments on the actual threads, duh, no, it is just comments!

Comment by DeniseC on August 17, 2016 at 4:30am

I don't have hair extensions, but I do have an Intralace System, which is similar. It comprises a fine webbing with full hair, attached to my own hair (on the crown and sides) by my own hair being threaded through and extensions woven into it. 

Ordinary extensions wouldn't work for me, as all they would do would be to thicken the hair that I still have, and it's thick anyway. The issue (in my case) is the fact that however thick (or long) my hair is, it won't attach to the bald bits, so I will always have those seemingly acres of scalp showing once my carefully arranged hair moves from place!

So the Intralace works for me - and looks great. Very pleased.

As for the long term impact of having it (or extensions), I really do not know. I asked those questions, and of course, no one can tell you. But, again for me, that was a risk worth taking, as I felt I just didn't want to go on feeling as I did about my hair loss. And this was the best solution I could find.

So my advice would be to stop adding to the stress by worrying about it. If the extensions look great, enjoy them, and you will, by default, reduce your levels of stress as your confidence returns.

Good luck to you!

Denise

Comment by Marian on August 16, 2016 at 9:31pm

HAS anyone used extensions to help cover hair loss? I just had some put in the front side areas and they look great but I'm now panicking in case the stress on the scalp increases the hair loss.

Comment by Mel on August 11, 2016 at 5:46pm

Joy: That's one of the worst things ...knowing there is no know cause or cure. So frustrating. Mine never itched and never acted up on the left side of my head and now it's doing both. Awful.
I did get some eyebrow regrowth putting castor oil on them every night. I hear olive oil is good for growing eyelashes but I rarely use it because it gets in my eye and stings. Might try just putting it on the lash line, not on lashes. I put coconut oil on my head at night, which is soothing.
I am trying to go back to 100% AIP diet again to see if that helps. Perhaps coffee, grains, sugar and alcohol are causing my hairline to stress. When I see it thinning I get more stressed.
But you are right. Meditation, yoga, sleep. Whatever it takes we must keep stress at bay. I also heard hydration is important for people with an autoimmune condition. I am going to re-commit to hydration!

Comment by Joy on August 11, 2016 at 5:25pm

I have not commented in a while but try to keep up with all the new news - I am so confused as to why I stopped losing hair as I hate that so many of you have not - I have gone back to the retinol night cream and serum from Roc as an experiment and have had no problem but I do not use anything with spf in it.  I have still been using mineral makeup but mostly as it does not seem to bother anything and I simply have not had time to do additional research.  I still take milk thistle and 4 b-complex stress formula daily and will say for those of you that are stressed that it is extremely helpful.  I also have been experimenting with rogaine 5% again - I had avoided putting it on the hairline above my forehead as the lichen simply never totally clears up - never does anything - no hair loss - no itching - just there - but this time I thought what the heck - much to my surprise it has almost totally cleared up the lichen - go figure - so I actually have started using it twice a day and putting it on my eyebrows - or where they used to be - as well - I am over three years from the shedding of hair and medication nightmare - for those of you that are just starting the lichen loves stress so please all take care of yourselves.  Maybe the lichen is just an indication that the hair follicles are starting to die and perhaps the rogaine stops that from happening - will report back later to let you all know what happens

Comment by CarolJ on August 9, 2016 at 10:30pm

That's crazy! I was thinking the same thing when I saw her. But I thought, no it couldn't be, she's too young. But anything is possible, right?

Comment by CurlyK on August 9, 2016 at 10:17pm

Omg dragon&fox! I was thinking the same thing about Katie just a bit ago as I watched her win another gold medal!!! Amazing how we notice it much more once we've been diagnosed and finally have an understanding what's happening to us.

Comment by DragonandFox on August 9, 2016 at 10:01pm

I am noticing people with FFA more and more now.  I would venture to guess USA Olympic Gold Swimmer, young Katy Ladecki has FFA.  She's showing signs of male pattern baldness. What I find so interesting is, I bet she does not even realize it.  :(  Maybe they will find a cure sooner than later with so many people now being diagnosed.

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