Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 600
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Minter on July 19, 2019 at 9:13am

No, I don't take any meds at all for this, I'm really sorry to hear you are having those awful side effects from the finisteride, they sound horrible. 

I have recently tried dabbing a bit of CBD salve or oil mosquito/horse fly bites & rashes (I seem to get bombarded by flying biting bugs and more while mowing the lawn and that is after I cover myself from head to toe in a long sleeve shirt/pants/tucked in socks/hat and gloves)!!!

It seems to me that they seem to stop itching and heal faster.  CBD (hemp not from marijuana) seems to be my new go to for everything lately.  So maybe that might help for the red bumps you have? 

Comment by Anonymous on July 18, 2019 at 10:37pm

My derm has prescribed minocycline for the red bumps at my hairline. They seem to have increased since last appt. Has anyone else used this? I have been taking finisteride for about 5 mos. with minimal improvement. It upsets my stomach, the antibiotic is supposed to do the same, plus vertigo. Getting a lot of meds here.

Comment by Bloomingdalekid on July 9, 2019 at 10:24pm

I have always had a low temperature.... 96.9 to 97.6 is pretty normal for me.  (36.0 - 36.4 celsius).  Never correlated low temperature and hair loss or slow hair growth.  Interesting thought.  

Comment by Afraid on July 9, 2019 at 10:12pm

Hi Plf,  haha... I take temp orally with digital thermometer.  

Comment by Plf on July 9, 2019 at 9:04pm

Hi afraid, no low temp, but a low temp would definitely affect hair growth, ..what are you taking your temp with? And where? If not a rude question

Comment by Afraid on July 9, 2019 at 5:52pm

Love all the information, thank you.

random question do any of you have a low body temperature- mine ranges from 33 to 36.1 is that normal?  Could it affect hair growth?   

Comment by illustr8r on July 9, 2019 at 3:12pm

@Thanks CurlyK 

I will give the baby shampoo a try. I have a tube of Triamcinolone Acetonide that my dr gave me for random itches and blotches. It works to reduce redness but if I wash my face/shower it flares up and starts to itch and sting.

@Pauliegirl I’ve adopted a vegetarian during the week and meat (if I want it) on the weekends diet. It’s helped with staying slim and hopefully will reduce my cholesterol. I have another 3 months til I get labs again. I do feel better!

Comment by pauliegirl on July 9, 2019 at 9:18am

Hello, 

For those of you who are concerned about high cholesterol, adopting a plant-based diet can remedy it! It’s the saturated fat in the animal products that we consume that, for most people, is the guilty party!  Great person to explain this is Dr Neal Barnard. Check him out on YouTube! 

I have a bazillion things in the mix, including accutane (amnesteem) since 11/2017 (zero side effects), stopped all spf products as well as other commercial face/body care products 7/2017, transitioned to AIP diet 3/2017 and now on Dr Goldner's green smoothie/high water intake/vegan protocol since 1/2019....and I have had no hair loss since appx 9/2018. I also shut off my autoimmune blood marker (elevated ANA since 1989) as of late 3/2019 :)  I know it’s a lot of info (and there’s more but I will stop where I did lol!)  but I thought y’all might be interested with the cessation of hair loss. 

Jamie

Comment by CurlyK on July 9, 2019 at 9:07am

Illustr8r, it is most likely related. I’ve gone through times of itching around the eyebrow area as well as eyelids. I met an ophthalmologist who told me to wash my lids with baby shampoo which has helped tremendously. In fact, I wash my whole face with baby shampoo. Hope this helps. 

Comment by Minter on July 9, 2019 at 8:45am

illustr8r, same here!  Working out & on cholesterol meds, but even though through diet and exercise I got my numbers down this past year, my Doc still has me on the meds which is frustrating as I'd rather not take meds that I don't need.  I also had/have? fatty liver disease yay. though I was able to get those numbers down significantly as well- getting old is not easy!!!!!

* I always thought I had a pretty good diet/exercise thing going on but seems (now that I know menopause can be the culprit) I was wrong :-(  

I don't have any rashes like you described, but I hope yours is not a 'lichen-something' and maybe it is just a weird summer rash!!!

 

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