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Comment by Celia on April 23, 2016 at 5:59pm

Hello ladies. For some tome I haven't been able to post and could not log on. It's bizarre since it was I who started this frontal fibrosing alopecia group on Alopecia World back in 2012. Today I managed to log on again and it's heartening to note tat so many ladies are still communicating..

Comment by Sad in chicago on April 23, 2016 at 1:12pm

Thank you Denise!  

Comment by DeniseC on April 23, 2016 at 7:43am

hi Liz

Not so far - but I have only had it for six weeks. It still looks exactly the same as it did. In terms of what I do - I follow what they said, so wash with the stuff they gave me, then put the hair mask on and leave (sometimes for up to 30 minutes of so - soak in the bath with a book!). Then spray with the 'magic spray' and put the heat mask on. I try not to use a hairdryer on it - I scrunch dry my own hair with a dryer (it needs the 'lift') but leave the System bit to dry naturally. And I don't use straighteners.

I would ask Lucinda Ellory for advice.

Good luck!

Denise

Comment by Liz on April 22, 2016 at 6:45pm

Denise, so you find that your Lucinda Ellery hair drys out fast? I'm using a variety of products on mine but it's still dry. I'd be interested to know what you use? X

Comment by DeniseC on April 22, 2016 at 5:22pm

Hi all

Just got back from my first maintenance appointment at the Lucinda Ellory clinic - as your own hair grows, it pushes the Intralace up, so it needs to be tightened. All fine and dandy!

I saw one of the owners/directors, so asked him if there were any plans to extend their US presence - they currently have clinics in LA and NY. Apparently, they are very keen to extend their geographical area, but of course it is a major step for them as they are a UK based company.

I did tell him there were loads of people on this forum who might well be interested. And, Sad in Chicago, just for you, I said Chicago would be a good place to start!

Denise

Comment by Sad in chicago on April 22, 2016 at 3:32pm

Funny!

Comment by Jen on April 22, 2016 at 3:30pm

I was at a Rihanna concert recently and I noticed that she kept pushing down on her hairline with her fingers while on stage. She must be having some issues too. 

Comment by Sad in chicago on April 22, 2016 at 3:24pm

Thanks everyone...I am trying to manage my expectations but hoping very much that this could work.  As I have said, my topper is good quality and no one knows, but it is lifestyle that is getting in the way.  I am always messing with it, but it sounds like I will always need to mess with the "system" too.  However, I was always messing with my own hair before, so what's the difference?!  Stay tuned.....

Comment by sallylwess on April 22, 2016 at 2:40pm

DeniseC, thank you for all of this information.  I thought about this system, and would like to consider it, but when I think of the expense, I shudder.  Those of us not living near LA or London, would have to add travel costs of expensive flight to even do the maintenance on such a system.  Sad in Chicago, I will be interested to find out what you learn on your appointment.  

Comment by DeniseC on April 22, 2016 at 4:23am

Hi Sad in Chicago (maybe soon to be happy in Chicago?)

It's pretty well as MnM says - and yes, I can do anything at all in it. They cut the Intralace according to where you need it, so if you need it at the back (I don't), then you get Intralace there, too.

Sorry if I made it sound uncomfortable - I didn't mean to, as it isn't.Unless I think about it, I am not aware of it on my head at all. And now I have sorted the colour and style - and will stick with this - the only even-vague issues are applying the tape, which I personally find a bit hit and miss (but hope I will get better with experience!) as, by necessity, it is very sticky, and the increased amount of time I spend on my hair. But that is from someone who, pre-FFA, did a one-minute wash in the shower and then just left it. Oh - and looking like I have seen a ghost first thing in the morning! Bed-head extreme.

The one thing that is different from the system MnM describes is the hair they use. Not sure about the USA, but in the UK it is very, very expensive to buy human hair from the West. So the hair that Lucina Ellory uses is from the Indian temples. It is fine - somewhat different texture to my own, but now it is styled correctly, no one would know. And it is very shiny and healthy looking. No problems at all. But I would ask.

Other things I would ask include:

• Depending on how bad your hair loss is, how do they match to your own hair? (My System is just at the front, not back, so it needs to blend thoroughly. If you are having new hair going over the crown onto the back, it is less of an issue.)
• The real cost of ongoing maintenance. I suspect that once you go with a system, you will want to stick with it - forever, so on-costs are really important.
• How long the new hair will last. Because it is not getting any nutrients from you, it needs more care and 'feeding' from a good mask/conditioner (they should give you that), but will inevitably not last. So how often will you need to replace the hair (not the system).
• How often will you need to replace the whole thing? Lucinda Ellory says two years. That is a larger expense.
• For me, I have to go back every six/seven weeks to have it tightened, as my own hair grows. That costs me around £75.
• Colour - the new hair is chemically treated, and its colour has stayed stronger than my own hair. I have resolved this with my own hairdresser, but if you have your hair dyed, it is certainly something to discuss with them.

Think that's all. Another long one from me.

Denise

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