Alopecia World
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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 599
Latest Activity: Jul 25
Discussion Forum
Dermatologists who specialize in alopecia?
Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
Food Allergy Testing question
Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
Hair Toppers
Started by Leni. Last reply by Lang Bozic May 22. 10 Replies 0 Likes
I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue
Get Ahead of Hairloss Event plus new information on FFA
Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies 1 Like
Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue
Comment Wall
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Comment by Sad in chicago on December 29, 2015 at 7:18pm
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yes my research indicates it could happen all over again, and the expense is huge.
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Louisa, we are not candidates for hair transplants as the procedure would cause inflammation and activate the condition.
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Hello everybody. Has someone ever heard of hair transplants in FFA cases? My derm thinks that it may work for three four years.
thank you
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Ladies, congratultions to Sallylwess! I have been mentioning and offering advice on a custom clip in piece since I joined. They save the day and I feel so much better while wearing mine that I won't leave the house without it. However Sally, yours looks even better and more natural than mine. Great job! Happy Holidays.
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Thank you for sharing sallylwess! I am just at the point of investigating getting something like this. It looks great!
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Wow! You look so wonderful and I can tell by your smile you feel great. Thanks for sharing that with us!
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Sally,
This piece seems to really fit the needs of our group. Great job.
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Comment by silversurfer on December 26, 2015 at 5:22pm
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Wow it looks so natural.
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Comment by sallylwess on December 26, 2015 at 4:55pm
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Should say, "since cut into bangs."
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Yes, Jen 1. The side swept bangs, which I have sense had cut into bangs, and the upper portion of the temple area are hairpiece. The curls below in the front are mine. The piece is not a topper. A pattern was drawn on paper of the portion of my scalp without hair. This was used to form the base where the hair was attached for the hair piece. I experimented by cutting up old wigs before we made the final piece.
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