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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 602
Latest Activity: Jul 14
Discussion Forum
CARF Conference 2018 Notes
Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Botox and FFA
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Trying a new approach with CBD oil...
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Man with FFA. New member.
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Comment Wall
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Comment by Tessa on December 29, 2015 at 7:23pm
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Hi,
I'm new to this site and found the comments very helpful in terms of 'not being alone'.
I developed FFA 2-3 years ago, age 51, at exactly the same time I was diagnosed with coeliac disease, although the FFA was only recently identified. I started by losing all the hair on my arms and legs, then gradually more typical symptoms appearing around my face, most recently the eyebrows. Sounds pretty standard from reading the comments below.
I'm wondering if anyone else has the same connection between these auto-immune conditions and
if high levels of stress make it worse? Seems to for me.
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yes my research indicates it could happen all over again, and the expense is huge.
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Louisa, we are not candidates for hair transplants as the procedure would cause inflammation and activate the condition.
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Hello everybody. Has someone ever heard of hair transplants in FFA cases? My derm thinks that it may work for three four years.
thank you
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Ladies, congratultions to Sallylwess! I have been mentioning and offering advice on a custom clip in piece since I joined. They save the day and I feel so much better while wearing mine that I won't leave the house without it. However Sally, yours looks even better and more natural than mine. Great job! Happy Holidays.
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Thank you for sharing sallylwess! I am just at the point of investigating getting something like this. It looks great!
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Wow! You look so wonderful and I can tell by your smile you feel great. Thanks for sharing that with us!
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Sally,
This piece seems to really fit the needs of our group. Great job.
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Comment by silversurfer on December 26, 2015 at 5:22pm
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Wow it looks so natural.
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Comment by sallylwess on December 26, 2015 at 4:55pm
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Should say, "since cut into bangs."
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