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Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
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Wow. This is really a fascinating thought about Vitamin A. Just wanted to chime in about a couple of possible connections that I have thought about since this discussion started. First, I used to take a multivitamin everyday that had a lot of vitamin A in it (along with a lot of other vitamins, of course), but I stopped taking it about a year ago because I noticed that whenever I took it regularly, I noticed more hair thinning around my front hairline. Also, when all of my FFA started, I was using Retin A on my face regularly. During peri-menopause, I started getting cystic acne on my face (never had acne before this) and my doctor prescribed Retin A. That is when my hair started falling out on my temples really bad. Of course, I was in peri-menopause (my hormones were fluctuating like crazy!) and had VERY low ferritin levels as well. I also had my first flu vaccine, after contracting a horrible flu the year before, which I also feel added to the hair loss/developing this condition, because a bunch of hair fell out a couple of weeks after I had it. My immunologist and endocrinologist all say this revving up the immune system could exacerbate the situation. Anyway, just wanted to share my experiences with all of this. Now I have to go look up those foods high in vitamin A...
No one is interested to find ways to have access by hospitals/professors,etc, to an ALDH1A1 inhibitor? It could be the answer, save our hair and solve the LPP problem!
Would mean no more medications that just try to stabilize the disease. Here we would fight directly at the root of the problem!
Dr Wilma bergfeld, and Dr Olsen are two of the researchers that linked altered vitaminA metabolism in CCCA patients.
CCCA and FFA is the same disease with same causes and consequences but with a different pattern hairloss
Aldh1A1 inhibitor could save our resting hair girls! it would be worth a try
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