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Comment by Minter on June 29, 2019 at 8:24am

Good luck with the Moo Goo illustr8r!  I really like each one of the products I've tried so far and I am still using their shampoo & conditioner plus the protein shot.  

I am glad everyone seems to be doing well, the warm weather may have gotten in the way of posting online lately, which is a good thing!!!  

Comment by Toby on June 29, 2019 at 7:30am

Thank you Bloomingdalekid. This is the article!  I have stopped the oxybenzene and avobenzene almost 1 1/2 years ago. I had some regrow this. I still have titanium dioxide in my moisturizer and am considering stopping that as well. Need to stop SPF in sunscreen, moisturizer and liquid foundation. Has anyone else tried this and if so for how long and any results.

Love you guys!

Comment by Ada on June 29, 2019 at 5:24am

Does anyone need wigs? Maybe I can help you. Our company sells wigs, topper, toupee and extenstions. This is my email address: adatang@hairiwear.com. If you have any needs, please contact me.

Comment by Bloomingdalekid on June 28, 2019 at 9:42pm

https://www.researchgate.net/publication/325740394_Frontal_fibrosin...

Comment by Toby on June 28, 2019 at 9:17pm

The article is on researchgate.net by the Australian Journal of Dermatology dated June 2018.

Comment by Toby on June 28, 2019 at 9:13pm

Hi Lovely Ladies, Glad to see some folks out there. I am checking the site regularly also.

well I do have some optimistic news hopefully I am not just wistful thinking. I googled sunscreen and FFA full name. And found an article in the Australian Dermatology. The dermatologist had his FFA patient completely stop using sunscreen. After 18 months, there was some hair regrow this. After 2 years a little more. At 3 years after not using sunscreen, the hair had regrown and you could not see any bald spots.   The article includes photos of each of these time periods. I would send the article but I can’t figure out the technology on how to send. Please google and read it. You will find it interesting.

Best to all!

Comment by illustr8r on June 28, 2019 at 2:40pm

Thanks @Minter! I will give the MooGoo Anti Aging product a try and use the Udder Cream after I shower and/on my hands. :)

Current FFA status is stable I think. I’ve been using Watermans GrowMe Shampoo and I like it. I bought it’s matching conditioner and I’m happy with that too. It gives my hair volume and it feels thicker.

In August, I’m getting my brows refreshed. I’m so tired of drawing them on every day so it’s time to get them microbladed again. Last time I was there I didn’t know I had FFA. I’m curious to see if she knows about it now from from other clients who have it too.

It has been quiet here! I still check in. I hope everyone is doing okay and is having more good days than bad. You know how it is! ((Hugs))

Comment by Bloomingdalekid on June 28, 2019 at 2:39pm

I agree, it has been really quiet on here.  I agree with Kandy 15 that many have possibly gone to the Facebook page, although I don’t see any familiar names on there.  I think those of us that have been dealing with this for a while have come to the awful conclusion that there’s not a lot we can do other than try for acceptance, as the prescribed medications aren’t always helpful and can sometimes be detrimental to our health.  Others, like myself, have found alternative solutions in “helper” hair, and I’m very happy with my choice, albeit rather expensive.  When I take my helper hair off at night and see the reality of the disease, I still have a moment of sadness, but will not let it keep me from living my life.  Hey, a hat works really well too when I just need to run out.  I’ve gone back to work part time for the summer to replace the person that replaced me when I retired - she is on maternity leave.  I wear my helper hair every day and get tons of compliments on it, but it makes it harder for me at night to see what the reality of my hair is....  Oh well, it is what it is and these are the cards I was dealt in this life and am doing my best to learn to deal with it, although very difficult at times.  Hang in there everybody.... it’s great to have a group where we can share our feelings - and sometimes a few triumphs show up too.  

Comment by Kandy15 on June 28, 2019 at 1:52pm

Yes, this site has been quiet so, even though I look every day, I usually don't post.  Facebook has probably taken most posters or maybe we are just resigned to our fate with this stupid FFA.  Not much anyone can say to make us feel better or have hope for a cure.  For me, I'm still really depressed some days, and other days I'm like - whatever!  Gotta handle it the best way I can as the frontal hairline keeps receding and the active disease is still there.

Comment by Minter on June 28, 2019 at 8:53am

Hi illustr8r, sorry just saw this as I haven't been on here lately since it has been so quiet!  

I got the Ani-Aging Face Cream as a sample with my last order and I really like it and will order a full size.  I didn't use the udder cream on my face, but I did find it to be oddly drying as well - Did you order any of their other products? 

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