Comment

Comment by Maddy, California, U.S. on March 27, 2015 at 11:17pm

Oh, and I do take a probiotic daily too.

Comment by Maddy, California, U.S. on March 27, 2015 at 11:17pm

Hi Natalie, I have been on Doxycycline (1 low dose pill per day) for a couple of years now, and I understand your dilemma. I seem to have had good luck on the Doxy, along with Rogaine (Regaine), 1 Turmeric daily and now I have added Moducare. My FFA does not seem active now, nor has it for almost 2 years....so, I don't know what to think, but this "program" seems to be working for me right now, so I do not want to change it. I do not seem to have any side effects from any of it, except I am definitely more sensitive to direct sun. So, for now, I think I will stick with it. My doctor didn't seem to be concerned about me staying on the one low dose Doxy per day. I wish you the best with all of this...it is an incredibly frustrating and baffling condition!

Comment by NatalieW on March 27, 2015 at 10:08pm

Oh Sally - isn't it frustrating? I have found Regaine to be quite helpful but it also does irritate my skin so the Doxycycline and topical help to control that I think. I am concerned that if I stop the Doxycycline for 3 months - I won't see the impact of stopping it until it is too late.

Comment by sallylwess on March 27, 2015 at 9:45pm

NatalieW, I think you should get the opinion of another doctor before you decide for sure.  I have stopped taking all topical at this time because I have allergic reactions to them.  I am thinking of taking plaquenil because I have used every other thing, except Avodart, available to try and stop the progression FFA.  I have lost a great deal of hair recently and it is attacking the crown of my head now.  I stopped using Rogaine because of redness and flaking, but want to give it another try.  

Comment by NatalieW on March 26, 2015 at 5:25am

My Derm wants me to stop taking Doxycycline in 2 months when I next see him. His opinion is "why take something you may not need to". But I feel that it manages my redness/irritation on the front of my scalp, and I may not be able to tolerate using Regaine (which is growing some little hairs at the front of my hair line!!) with the Doxycycline. Any thoughts on this? My FFA is quite slow moving so far but certainly still active. I have lost 1/2 inch at the front of my hairline in 1 year but my eyebrows have regrown with Regaine.

Comment by Brooke on March 4, 2015 at 2:08pm

Sallywess: Your story touched me too.   I also lost a daughter many years ago and can identify with what you may have experienced.  Fortunately, I too have other children (all boys) and they have kept me going.  Now I also have granddaughters and sometimes see fleeting reminders of my daughter.  Bless you.

Comment by sallylwess on March 4, 2015 at 1:39pm

Kat, that is very interesting!

Comment by Sas Holland on March 4, 2015 at 8:40am

Thanks Kat, I will certainly have a good look into that option!

Comment by Kat on March 3, 2015 at 5:39pm

Hi Sallylwess & Sas, I have seen your comments that you were looking for curly hair that isn't black or dark. I found this link for a swim-hat-thingy and thought that maybe you could use that hair and get it made into a topper? http://hatswithhair.com/Order-Hybrid-Curl-Samples.aspx

Comment by Sas Holland on March 3, 2015 at 12:43pm

wow  Sallylwess, your story really touched me!

what a lovely idea of donating your daughters beautiful curls and how sad that it wasn't possible. I have 2 daughters and a son myself and I cannot imagine how it must feel losing one of your children. I think you are very brave woman and you look beautiful in your profile picture.

What a pity your other daughter doesn't want to cut her hair for you. If it where the other way around you probably do it for her immediately, that's how mother love works.

My hair does not grow very fast, I've tried very often to let it grow, but always stopped halfway through. I wish you all the luck in finding a better store with the best service for another topper,

thanks for sharing!

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