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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Thanks Maddy for your information. I an hesitant to change it when it has dealt with some of the irritation and isn't causing me any major side effects. I will discuss it more when I see him next
Oh, and I do take a probiotic daily too.
Hi Natalie, I have been on Doxycycline (1 low dose pill per day) for a couple of years now, and I understand your dilemma. I seem to have had good luck on the Doxy, along with Rogaine (Regaine), 1 Turmeric daily and now I have added Moducare. My FFA does not seem active now, nor has it for almost 2 years....so, I don't know what to think, but this "program" seems to be working for me right now, so I do not want to change it. I do not seem to have any side effects from any of it, except I am definitely more sensitive to direct sun. So, for now, I think I will stick with it. My doctor didn't seem to be concerned about me staying on the one low dose Doxy per day. I wish you the best with all of this...it is an incredibly frustrating and baffling condition!
Oh Sally - isn't it frustrating? I have found Regaine to be quite helpful but it also does irritate my skin so the Doxycycline and topical help to control that I think. I am concerned that if I stop the Doxycycline for 3 months - I won't see the impact of stopping it until it is too late.
NatalieW, I think you should get the opinion of another doctor before you decide for sure. I have stopped taking all topical at this time because I have allergic reactions to them. I am thinking of taking plaquenil because I have used every other thing, except Avodart, available to try and stop the progression FFA. I have lost a great deal of hair recently and it is attacking the crown of my head now. I stopped using Rogaine because of redness and flaking, but want to give it another try.
My Derm wants me to stop taking Doxycycline in 2 months when I next see him. His opinion is "why take something you may not need to". But I feel that it manages my redness/irritation on the front of my scalp, and I may not be able to tolerate using Regaine (which is growing some little hairs at the front of my hair line!!) with the Doxycycline. Any thoughts on this? My FFA is quite slow moving so far but certainly still active. I have lost 1/2 inch at the front of my hairline in 1 year but my eyebrows have regrown with Regaine.
Sallywess: Your story touched me too. I also lost a daughter many years ago and can identify with what you may have experienced. Fortunately, I too have other children (all boys) and they have kept me going. Now I also have granddaughters and sometimes see fleeting reminders of my daughter. Bless you.
Kat, that is very interesting!
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