Comment

Comment by Sad in chicago on January 13, 2015 at 1:38pm

I was told by my dermatologist that NOTHING has been proven to help FFA.  So I stopped doing everything in terms of medications, rogaine, etc.  But it sounds like some of you are actually having success with Rogaine.....not replacement hair but maintenance and thicker with what is left.  Am I correct?

Comment by Annie on January 13, 2015 at 10:40am

MJ, I use the men's 5% generic foam Rogaine once a day in the morning & apply my topical at night.  My doctor said that the foam can be used once a day, but the liquid needs to be applied twice a day, so I've never purchased the liquid.  I agree that it's difficult to keep the foam out of my hair, but I have noticed that when I take my time and separate my hair into rows I can apply it mostly to my scalp.  I find that the best time for me to apply the foam is right after a shampoo while my hair is still wet.  I follow up with a leave-in conditioner before blow drying to combat the drying effects of the alcohol in the Rogaine. 

Comment by Jen on January 12, 2015 at 11:31pm

Hi MJ,

Can you please describe your new diet and tell us what supplements you take?

Thank you kindly.

Jen

Comment by Annie on January 12, 2015 at 5:39pm

I use Rogaine on my entire head & eyebrows. 

Comment by MJ on January 12, 2015 at 4:36pm

Annie,
I am curious. Are you using rogaine all over you head or just in the hairline? I just put it on the hairline. Incidentally, the rest my hair is healthier than when I started this journey but I attributed that to my new diet and supplements.
MJ

Comment by Annie on January 12, 2015 at 10:38am

Rogaine has thickened my existing hair considerably.  My hairdresser of 20 years says that my hair has never been thicker in the areas that haven't been affected by the ffa.  My eyebrows & eyelashes haven't been affected at this point.  I also think that the Plaquenil / topical combination helped to stabilize my ffa and keep it from spreading further back on my hairline.  I took Plaquenil for about six months before noticing that my scalp was less tender and irritated. I didn't notice any difference in the hair loss until I'd been taking it for nine months.  I've been taking Plaquenil for 18 months now, and am still seeing some hair loss, but I think it would be worse if I'd chosen to do nothing. 

Comment by Pam on January 12, 2015 at 9:16am

I tried taking all the prescribed drugs, but decided that they were having no affect on my hairloss. Over the last ten years it has just got progressively worse, thinner on top and at the sides.

I felt that many of the experts I saw were themselves not sure about the efficacy of drugs for this condition, and we were all guinea-pigs in their treatment!

 I became worried about the long term nature of taking fairly strong drugs on other aspects of my health.

Consequently I have decided to address the problem by the other route, ie hair enhancement, and eyebrow tattoos. Since I did it over a year ago my confidence has improved enormously, and a huge worry has gone away, both about my appearance (especially on a windy day!) and the thought of taking drugs on a long term basis.

 

Comment by Maddy, California, U.S. on January 11, 2015 at 12:26pm

I've been using Lumigan (Latisse) on my eyebrows and lashes for years and it has definitely helped me maintain both. My brows were almost gone at one point and now they look pretty good. Rogaine has helped thicken my hair in the front, so am able to hide the areas where hair is missing better. I take 1 amoxicillin and turmeric daily. I also use clobestol topical once a day. Quite the regimen. I had the injections for a year, but don't think it did anything that using the topical once a day didn't do. 

Comment by Kristen P on January 11, 2015 at 12:20pm

I've been on minocycline (2 pills a day) for three months and have seen an improvement in redness at my hairline. I also have a new crop of baby hairs on the sides, which is great because my doctors were worried that FFA had moved there. I saw them on Friday and they are bumping me down to one pill a day to see if that still keeps it at bay. My eyebrows are still hanging in there, which may or may not be attributed to the one drop of Lumigan (a glaucoma drug that has the same active ingredient as Latisse) - since I don't know, I'm going to continue to use it!

Comment by Classical Anne in NC mountains on January 11, 2015 at 9:13am

Elidel and Rogaine have helped some with my brows [but they were already too far gone to expect total regrowth].  Scalp injections have kept FFA hairline loss at a snail's pace.

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