Comment

Comment by Annie on January 12, 2015 at 10:38am

Rogaine has thickened my existing hair considerably.  My hairdresser of 20 years says that my hair has never been thicker in the areas that haven't been affected by the ffa.  My eyebrows & eyelashes haven't been affected at this point.  I also think that the Plaquenil / topical combination helped to stabilize my ffa and keep it from spreading further back on my hairline.  I took Plaquenil for about six months before noticing that my scalp was less tender and irritated. I didn't notice any difference in the hair loss until I'd been taking it for nine months.  I've been taking Plaquenil for 18 months now, and am still seeing some hair loss, but I think it would be worse if I'd chosen to do nothing. 

Comment by Pam on January 12, 2015 at 9:16am

I tried taking all the prescribed drugs, but decided that they were having no affect on my hairloss. Over the last ten years it has just got progressively worse, thinner on top and at the sides.

I felt that many of the experts I saw were themselves not sure about the efficacy of drugs for this condition, and we were all guinea-pigs in their treatment!

 I became worried about the long term nature of taking fairly strong drugs on other aspects of my health.

Consequently I have decided to address the problem by the other route, ie hair enhancement, and eyebrow tattoos. Since I did it over a year ago my confidence has improved enormously, and a huge worry has gone away, both about my appearance (especially on a windy day!) and the thought of taking drugs on a long term basis.

 

Comment by Maddy, California, U.S. on January 11, 2015 at 12:26pm

I've been using Lumigan (Latisse) on my eyebrows and lashes for years and it has definitely helped me maintain both. My brows were almost gone at one point and now they look pretty good. Rogaine has helped thicken my hair in the front, so am able to hide the areas where hair is missing better. I take 1 amoxicillin and turmeric daily. I also use clobestol topical once a day. Quite the regimen. I had the injections for a year, but don't think it did anything that using the topical once a day didn't do. 

Comment by Kristen P on January 11, 2015 at 12:20pm

I've been on minocycline (2 pills a day) for three months and have seen an improvement in redness at my hairline. I also have a new crop of baby hairs on the sides, which is great because my doctors were worried that FFA had moved there. I saw them on Friday and they are bumping me down to one pill a day to see if that still keeps it at bay. My eyebrows are still hanging in there, which may or may not be attributed to the one drop of Lumigan (a glaucoma drug that has the same active ingredient as Latisse) - since I don't know, I'm going to continue to use it!

Comment by Classical Anne in NC mountains on January 11, 2015 at 9:13am

Elidel and Rogaine have helped some with my brows [but they were already too far gone to expect total regrowth].  Scalp injections have kept FFA hairline loss at a snail's pace.

Comment by Alice on January 11, 2015 at 9:01am

I agree with MJ that Elidel has helped my brows, but not my hairline. I use it once a day. Rogaine has thickened my hair so I can better hide the hairloss on the sides. I use the 5% liquid at night. Still searching for relief from bumpy, red, itchy, sore scap.

Comment by Polly UK on January 11, 2015 at 7:53am

Also C, Lymecycline (I think it's called)- which I believe you took about the same time as me last year - cleared the folliculitis which my Dermatologist said is the reason he prescribed it for me.

Comment by Polly UK on January 11, 2015 at 7:45am

Hi C, Hydroxychloroquine definitely stopped my FFA in it's tracks. Took about 6 months before I really noticed the difference. My Dermatologist agrees that it has worked for me and like me was sorry when I started getting the dark pigmentation on my neck and face. Fortunately the pigmentation has faded now I'm taking one tablet instead of two and my FFA is still stable. Antihistamines also helped to ease the burning and irritation. My Dermatologist said he wouldn't prescribe Cellcept for me as it's a 'hard drug'!

Comment by MJ on January 11, 2015 at 7:34am

C, I can definitely attribute eyebrow growth to Elidel. However I don't see any results in my hairline from it. Wish I had an answer to the question...would love to be free from the drugs and topicals if they really are not doing anything! MJ

Comment by Celia on January 11, 2015 at 5:49am

Is there anyone out there who has found any improvement in FFA that can be attributed to medication ? Thanks !

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