Comment

Comment by Liz on October 29, 2014 at 12:53pm

Hi Sas. I have had FFA for at least the past 3 years and my mum has it too for the past 6-7 years. She is 74, I am 43 x

Comment by Celia on October 29, 2014 at 12:17pm

Sas - if you look above on this page on the discussion forum you will see View All at the bottom - click onto this and go to page 4 - you will see the sheet compiled by Debs there.

Comment by Sas Holland on October 29, 2014 at 9:44am

hello C, I cannot find this info sheet from Debs, where do I have to look?

Comment by Sas Holland on October 29, 2014 at 9:39am

Haha, hello C, no problem and yes I am very grateful for alm the good advices here. Ik have yet  not seen the sheet you mention from Debs, but I am going to look it up!

Comment by Celia on October 29, 2014 at 7:10am

Hello again SAS - silly me - I should have read more about you before writing my last post !

Comment by Celia on October 29, 2014 at 7:08am

Hello Sas - welcome to this site. It seems that in many cases the eyebrows are the first areas to disappear, SOLUTION - TATTOOS . Eyelashes can go too, or at least severely thin. SOLUTION  you can have the eyelids tattoed - I just use a pencil. Self esteem also is affected - SOLUTION - support from friends and this site. Hairloss at the front and above the ears - SOLUTION - there are bespoke hairpieces that can be made - fantastic ! Have you read the info sheet that Debs created on this site ? Have you got a good dermatologist ? Where do you live ? Best wishes X

Comment by Sas Holland on October 29, 2014 at 6:03am

 I  mistakenly posted my questions on my discussion forum, but I think this is a better place isn't it?

I still have so many questions, since I got my diagnosis not very long ago, I am happy to have found this forum

 For instance does anybody know if it is hereditary? Are there cases known where both mother and daughter(s) have FFA? Or is it also possible that you can loose eyelashes too?

Comment by Annie on October 28, 2014 at 10:48am

MJ, I can see a light flaking on the areas affected by ffa, almost like dry skin.  I've also noticed it on my arms around the hair follicles.

Comment by MJ on October 28, 2014 at 6:14am

Annie,
That is great news! I am curious as to what scaling looks like. I had been told scaling was visible too, but I have never experienced any redness or aggravation and I donT visibly see any scales. Is it something you see with magnification?
MJ

Comment by Annie on October 27, 2014 at 1:03pm

Hi All, I just wanted to update you on my 6-month appointment with my derm last Friday.  After taking plaquenil for 15 months, my doctor said he is very pleased with my progress.  My ffa has not burned out, but it has stabilized.  He could not see any evidence that it has spread since my last visit.  I still have some scaling in a couple stubborn spots, but very little redness.  I am to remain on the plaquenil / topical steroid program and see him again in 6 months unless I experience a flareup.

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