Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Jules UK on October 29, 2014 at 1:08pm

UK SURVEY

Hi UK ladies, please remember to fill out the hairloss survey if you haven't already.  It closes on Friday.

http://www.alopeciaonline.org.uk/hairloss_PSP.asp

Thanks for your support! x

Comment by jess on October 29, 2014 at 12:56pm
Does anyone know if you can get hairpieces like the bespoke ones mentioned on here in the United States?
Comment by Liz on October 29, 2014 at 12:53pm

Hi Sas. I have had FFA for at least the past 3 years and my mum has it too for the past 6-7 years. She is 74, I am 43 x

Comment by Celia on October 29, 2014 at 12:17pm

Sas - if you look above on this page on the discussion forum you will see View All at the bottom - click onto this and go to page 4 - you will see the sheet compiled by Debs there.

Comment by Sas Holland on October 29, 2014 at 9:44am

hello C, I cannot find this info sheet from Debs, where do I have to look?

Comment by Sas Holland on October 29, 2014 at 9:39am

Haha, hello C, no problem and yes I am very grateful for alm the good advices here. Ik have yet  not seen the sheet you mention from Debs, but I am going to look it up!

Comment by Celia on October 29, 2014 at 7:10am

Hello again SAS - silly me - I should have read more about you before writing my last post !

Comment by Celia on October 29, 2014 at 7:08am

Hello Sas - welcome to this site. It seems that in many cases the eyebrows are the first areas to disappear, SOLUTION - TATTOOS . Eyelashes can go too, or at least severely thin. SOLUTION  you can have the eyelids tattoed - I just use a pencil. Self esteem also is affected - SOLUTION - support from friends and this site. Hairloss at the front and above the ears - SOLUTION - there are bespoke hairpieces that can be made - fantastic ! Have you read the info sheet that Debs created on this site ? Have you got a good dermatologist ? Where do you live ? Best wishes X

Comment by Sas Holland on October 29, 2014 at 6:03am

 I  mistakenly posted my questions on my discussion forum, but I think this is a better place isn't it?

I still have so many questions, since I got my diagnosis not very long ago, I am happy to have found this forum

 For instance does anybody know if it is hereditary? Are there cases known where both mother and daughter(s) have FFA? Or is it also possible that you can loose eyelashes too?

Comment by Annie on October 28, 2014 at 10:48am

MJ, I can see a light flaking on the areas affected by ffa, almost like dry skin.  I've also noticed it on my arms around the hair follicles.

 

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