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Comment by Classical Anne in NC mountains on October 10, 2014 at 4:40pm

Some interesting questions out there right now.

FLU - I had my injection last week and actually forgot about it til it popped up here.  I am high-risk and required to have the shot every year.  For me, no connection with my FFA.  Been regular with the flu shots since long before the FFA set in.

FRIZZ - I really hate it!  I have naturally curly hair which I've worked hard to tame all my life.  But this is a lot more frizz than curl, and I do not like it!  Terry, I will look for Elvive.  Thanks.

ARM HAIR [who knew this would ever be a topic of conversation?] I lost every single hair on my arms, and can even see the million tiny depressions where the follicles died.  But since I began using Rogaine on my eyebrows [not my hair], I've gotten about a dozen very fine blond hairs on my right arm, but not my left.  Go figure!  And though they've thinned, I've still got plenty to shave on my legs.  Where's the justice in that?!

JEN - my heart aches for you. I hate that you are losing hair so rapidly, especially as a young mom with so much else in your life.  I've got 2 different opinions on giving up at this point.  Yes, 6 months is too early to abandon all hope, though it may be time to seek a different combination of treatments.  On the other hand, if it's going so extremely that you know you'll be into a wig very soon, then I would say, "Let it!"  You don't need added stress in your life, which undeniably exacerbates the FFA and any other health problems you may have.  Maybe dropping all the treatments, and finding a wig you really feel good in, is the way to go, and may even serve to slow the stress-induced loss.  I wish you comfort and self-confidence again.

Comment by Liz on October 10, 2014 at 11:58am

Has anyone elses arm hairs gone frizzy too? I'm not particularly hairy and less so since I've had FFA but the hairs I do have on my arms look like they've been singed. They are almost zigzag 

Comment by Annie on October 10, 2014 at 11:03am

I'm having the same problem with my hair that so many of you are having.  The hairs around the areas where I have the ffa are wispy, curly, and full of electricity.  I suspect these hairs have been damaged by the ffa and just haven't completely fallen out yet (lovely thought).  It also seems like the rogaine foam contributes to my frizziness.  My hair is naturally straight, so I'm always fighting it.    My hairdresser showed me how to rub a tiny bit of argan or vitamin e oil on my fingers and lightly coat those flyaway hairs.  This trick has worked wonders for me.  I even keep a bottle of argan oil at work for humid days. 

Comment by Jen S. on October 10, 2014 at 8:26am

PS - I hated my hair in my profile pic - sure miss it now.  Oh well :-)

Comment by Jen S. on October 10, 2014 at 8:25am

Okay guys - reality check.  I was diagnosed in March - -so, about 6 months of treatment (and I am taking just about everything you can take) once all was up and going.  Still seem to be losing the battle.  I am on the verge of "giving up" the battle.  Am I being too hasty?  I was so very hopeful when this mess began and am now walking around in a bit of a cloud.  I suppose I am looking for a "atta' girl -- hang in there" on an overcast Friday morning in Atlanta.  Thanks for putting up with me, ladies! :-)

Comment by Liz on October 10, 2014 at 7:33am

I'm very wary about all injections, flu and otherwise. If you do have the flu injection Celia do so because you have informed yourself and decide to and not because the doctor suggests it, unless you are in a high risk category and having flu would be a major health risk.

Enjoy your meet up next week.

xx

Comment by Celia on October 10, 2014 at 6:40am

The flu shot apparently does NOT contain live viruses - it cannot give you mild flu just a sore arm.  I will go ahead and have this.  The nasal one they are giving to under 4s in UK does contain live viruses but they have removed the ones that make you sick. 

Comment by Celia on October 10, 2014 at 6:35am

Oh dear - I am due a flu shot in 10 days time.  I had one last year and spoke to my doctor about the probs |(extra) it might cause me - she said it would not be a prob for me - now I don't know what to think.....

If anyone coming to me for our get together next week on the 16th does not know how to get here - please send me your e mail address to my inbox on this site and I will give you directions - don't want to give them here for obvious reasons.  Look forward to seeing you !

Comment by Maddy, California, U.S. on October 9, 2014 at 9:38pm

Hi MJ, Well, I hate to say this, but I definitely think the flu vaccine was a trigger for my FFA. Mine started about a month after my first flu vaccine. There certainly could have been other factors involved....but whatever the mix was, I think the flu vaccine was a trigger for me. My immunologist told me no live vaccines and to be careful with other ones. My endocrinologist and my dermatologist (CARF recommended) both agreed that this could have been a trigger for me. However, I know that all our triggers seem to be different, so if you have not had trouble with the flu vaccine before...it probably isn't one for you. This condition is so crazy because it seems to be so different for everyone. Good luck making this decision.

Comment by MJ on October 9, 2014 at 9:20pm

Hi all, looking for feedback on annual flu shots. I just got a new job and found out that a condition of employment is a flu vaccination. In order to get an exemption, one must have documentation from clergy or medical exemption from a physician. My first flu shot a couple of years ago is on my list of possible triggers of FFA. Has anybody run into this with their employer and successfully gotten exemption, or can anyone assuage my fears of getting the flu shot?
MJ

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