Comment

Comment by Jen on October 8, 2014 at 3:44pm

Hello Ladies,

Just thought that I would pipe in about "THE FRIZZ". I have had difficult frizzy hair all my life. My hair is about 1 inch coils, very coarse and dry. I could never leave the house without a lot of product which ends up making my hair crispy. Recently, I have been using stuff out of my kitchen to calm  my hair. I wash my hair every other day and the night before washing, I usually slather it with coconut oil (olive oil if I do not have coconut). I then put  it in a bun at the top of my head and over the whole thing with a plastic grocery shopping bag and go to bed. Next day, I wash it out but I do not over wash it.  Then I condition, rinse and use a leave in conditioner. By the time it dries, the hair is softer. I never brush or comb my hair because it will result in a huge disorderly afro. If I could get rid of that nasty coconut oil smell then I would use oil in my hair during the daytime also and not leave in conditioner. I hope that this information helps. When I was a child, my grandmother spent many hours massaging all her grandchildren's skin and scalp with coconut oil. I think she knew something. 

Comment by Catherine on October 8, 2014 at 3:03pm

Thanks Debs for letting us know about the CARF meeting on the 14th of November. I will definitely go too!

Comment by Debs on October 8, 2014 at 1:17pm

I have followed the same idea as Liz re shampoo. I used organic for about 2 years but recently have gone back to Redken, I also dyed it last week. I have been wearing my own hair increasingly, with my wide headband/silk scarf round the front hairline. I am wearing a wig to work but in my personal life I am wearing myown hair as I have got used to 'styling' myself now.

Friday 14 Nov CARF hold their 2nd London patient support group. I went last year. If I am not working I will pop along.

Comment by Classical Anne in NC mountains on October 7, 2014 at 3:02pm

Hi Ladies, I have had the same issues with my remaining hair -- it is frizzy, limp, and totally uncooperative!  It is for that reason, rather than how far it has receded, that I now usually wear a wig to meetings and gatherings.  [Speaking of which, I hope your group meet is wonderful again!]

Celia, I have found that some form of Retin-A cream, which I get in samples from my derm, fills in the injection dent rather miraculously.  If I stop using it for about a week, it does tend to show up again.  But so easy to erase it with the cream.  And, of course, I'm still receiving the injections, so can't expect it to fill in naturally and totally until some time [perhaps a couple years] after I stop the injections.  But as I've said before, my little dent is barely visible to anyone other than my husband or derm, and is so easily covered with bangs.  I hope you can 'erase' yours soon!

Best to all,

Anne

Comment by Liz on October 7, 2014 at 2:12pm

Hi Terry. My hair is now frizzy and unmanageable however I was given some good advice by a lady with FFA and it worked for me. I told her how I changed to natural unperformed products and barely touched it through fear of it falling out. She suggested that maybe I was been too kind to it. So now I don't take any notice of what make my shampoo/conditioner is however I always use the conditioner that you have to leave on for 5 plus minutes. I also dry with one of those round brushes with soft bristles all round the outside. It's done the trick. My hair now drys flat and is not breaking off as much x

Comment by Celia on October 7, 2014 at 1:45pm

Hi Terry - I have the same problem - it is as though the hair is much finer and tends to lie flat.  Due to the intra lesional injections, I have been left with a ridge at my current hairline and the hair seems to annoyingly follow that contour - I do wish I had never had those injections.  I use a volumising shampoo called Herbal Essences uplifting volume then a Kerastase conditioner topped off (!) with KMS California root boosting spray before blow drying what is left ! I swear I come back with less hair every time I go to the hairdressers - all that blow drying and pulling at it whilst that is being done - I don't think is so good.  I am going to ask my hairdresser to just dry it using her fingers then literally just finish it off gently with a brush - I take my own brush as the spiky hairdressers ones hurt my scalp.  I do sound precious don't I ? !

Sorry you can't make the get together - for those who have missed the info - it is on the 16th October.

Norfolk Girl - a Skype chat sounds good. Sorry you can't make it too. x

Comment by Norfolk Girl on October 7, 2014 at 3:17am

Hi C, I really can't make it as I have an old and needy( and lovely!) dog and it is a long journey. I wondered if I might meet you all via a Skype call for 10-15 mins?

Comment by Celia on September 30, 2014 at 2:43pm

Ladies - so far it looks like we have Deb, Pam, Catherine, Moira, Meme and hopefully Jules.  Norfolk Girl - if you change your mind please let me know - it would be lovely to meet you !  If I have missed anybody out, do shout ! x

Comment by Celia on September 30, 2014 at 10:57am

I will e mail Jules about the dates for our get together - she is still on holiday I think and missing this glorious weather we have here !!! I will keep posting on here and sorry if I appear to keep repeating as several ladies are logging on to this site intermittently.  So looking forward to seeing people !

Catherine has said the 16th is best for her - I will see if that's OK for Debs too x

Comment by Pam on September 30, 2014 at 3:55am

Any of the dates would suit me - Oct 15th, 16th or 17th. I`m easy! Just let me know what suits you best, so that I can book it in before other things crop up!

 

Cheers,

Pam

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