Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Celia on October 7, 2014 at 1:45pm

Hi Terry - I have the same problem - it is as though the hair is much finer and tends to lie flat.  Due to the intra lesional injections, I have been left with a ridge at my current hairline and the hair seems to annoyingly follow that contour - I do wish I had never had those injections.  I use a volumising shampoo called Herbal Essences uplifting volume then a Kerastase conditioner topped off (!) with KMS California root boosting spray before blow drying what is left ! I swear I come back with less hair every time I go to the hairdressers - all that blow drying and pulling at it whilst that is being done - I don't think is so good.  I am going to ask my hairdresser to just dry it using her fingers then literally just finish it off gently with a brush - I take my own brush as the spiky hairdressers ones hurt my scalp.  I do sound precious don't I ? !

Sorry you can't make the get together - for those who have missed the info - it is on the 16th October.

Norfolk Girl - a Skype chat sounds good. Sorry you can't make it too. x

Comment by Norfolk Girl on October 7, 2014 at 3:17am
Hi C, I really can't make it as I have an old and needy( and lovely!) dog and it is a long journey. I wondered if I might meet you all via a Skype call for 10-15 mins?
Comment by Celia on September 30, 2014 at 2:43pm

Ladies - so far it looks like we have Deb, Pam, Catherine, Moira, Meme and hopefully Jules.  Norfolk Girl - if you change your mind please let me know - it would be lovely to meet you !  If I have missed anybody out, do shout ! x

Comment by Celia on September 30, 2014 at 10:57am

I will e mail Jules about the dates for our get together - she is still on holiday I think and missing this glorious weather we have here !!! I will keep posting on here and sorry if I appear to keep repeating as several ladies are logging on to this site intermittently.  So looking forward to seeing people !

Catherine has said the 16th is best for her - I will see if that's OK for Debs too x

Comment by Pam on September 30, 2014 at 3:55am

Any of the dates would suit me - Oct 15th, 16th or 17th. I`m easy! Just let me know what suits you best, so that I can book it in before other things crop up!

 

Cheers,

Pam

Comment by Catherine on September 26, 2014 at 9:44am

Hi C,

The 16th would work best for me, if that suits you all too?

Thanks so much,

Catherine 

Comment by Meme on September 26, 2014 at 5:29am

Hello C

Sorry, meant to write yesterday. Our trip has had to be cancelled so I can now make any of the dates.   Thank you C.

meme

Comment by Celia on September 25, 2014 at 6:07am

Meme - have added the15th Oct to list of possible dates - any good for you ?

Comment by Celia on September 25, 2014 at 6:02am

Yes Catherine - by train from London is easy.  I will send you directions.  Can you make any of the dates I suggested ?  If people let me know which dates are possible then hopefully we will find one date that suits most.  I will invite you as a friend on this site to give you info. Thanks, C

Comment by Norfolk Girl on September 25, 2014 at 5:36am
Hi C, sorry but can't make those dates. Hope you have a good day.
 

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