Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Catherine on September 26, 2014 at 9:44am

Hi C,

The 16th would work best for me, if that suits you all too?

Thanks so much,

Catherine 

Comment by Meme on September 26, 2014 at 5:29am

Hello C

Sorry, meant to write yesterday. Our trip has had to be cancelled so I can now make any of the dates.   Thank you C.

meme

Comment by Celia on September 25, 2014 at 6:07am

Meme - have added the15th Oct to list of possible dates - any good for you ?

Comment by Celia on September 25, 2014 at 6:02am

Yes Catherine - by train from London is easy.  I will send you directions.  Can you make any of the dates I suggested ?  If people let me know which dates are possible then hopefully we will find one date that suits most.  I will invite you as a friend on this site to give you info. Thanks, C

Comment by Norfolk Girl on September 25, 2014 at 5:36am
Hi C, sorry but can't make those dates. Hope you have a good day.
Comment by Catherine on September 25, 2014 at 5:17am

Hi C, Thank you so much for organizing! Is it possible to reach you by train from London? I don't drive unfortunately...

Thanks,

Catherine

Comment by Celia on September 25, 2014 at 4:37am

Hello ladies in the South East - I am trying to organise a get together as it's a while since we had one - I am suggesting the 15th,16th or 17th October if anyone is interested - close to Junction 2 M40 - please let me know if you can make any of these dates and I hope to see you !

Comment by Catherine on September 24, 2014 at 5:43pm

Hi Debs, Anne and everyone, I will try to get a transcript of the full article on the injections (as opposed to just the abstract). I am not subscribed to the medical journal that published the article, but I will see if my GP can download it for us. 

More soon...

Catherine 

Comment by Debs on September 21, 2014 at 1:49pm
Ladies using minoxidil please be careful if you have cats, it is toxic for them, i used throwaway latex gloves to apply topicals when i used them to ensure nothing was transferred to pets.

Good luck with your treatments.
Comment by MJ on September 20, 2014 at 9:45am
I am going to try to use it at night, but I think thAt means I will need to wash my hair every single morning. I only like to wash it every other day and sometimes less on the weekend. I was told to use it over top of the Rogaine. Of course I failed to ask how long I should wait before applying it. I am going to pick up the rx today and start tonight. I am excited about using it on my eyebrows. The Rogaine has definitely helped them along, but I would love to see them fill in a bit more.
 

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