Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Celia on August 12, 2014 at 1:16pm

Norfolk Girl - you will look and feel great once the eyebrows are done - they make such a difference.   Liz, I wonder which derm you are currently seeing.  I have seen no-one this year, am not taking any meds, just using dermovate and nothing has changed radically except I obsess on it less prob because I am not taking tabs every morning.  I wonder ?

Comment by Liz on August 12, 2014 at 1:08pm

Hi all. CJ I have seen Dr Farrant, Dr Harries, Dr Christos and recently Dr Sharon Wong at Hommerton hospital. 

In my experience all the derms I have seen know their stuff and the medications etc that they offer are all similar.

My personal opinion is find a derm who you like, one who you feel comfortable with and one who you feel at ease with. One who gives YOU what you need.

I prefer one who is warm and empathetic. I know others of you prefer someone who is efficient rather than warm. The one that works for you is the best one.

xx

Comment by Norfolk Girl on August 12, 2014 at 10:45am
Whoops, that lotion is mometasone furoate!
Comment by Norfolk Girl on August 12, 2014 at 10:44am
Hi CJ. I was diagnosed with FFA two years ago at which point my hairline had stopped receding but I had lost about an inch and a half. My bigger issue is however the almost complete loss of my eyebrows which were Kate Middleton like! I am having eyebrow tattoos from Belinda Hayle in September which I am really looking forward to! I have seen Dr Farrant twice, once about six weeks ago as I thought my hairline had started again(itching and redness) and he prescribed Elocon scalp lotion (momenta some furoate) which is a steroid lotion. At present it appears to have done the trick. I live in Norfolk so not exactly convenient for Dr Farrant in Sussex but I do think he is good. I have seen him privately both times. Interestingly I got nowhere with one visit to the GP about three years ago but then investigated the idea of eyebrow transplant and it was the trichologist who thought I had FFA and referred me to Farrant. By the way eyebrow transplants are a nO no as they are thought to be likely to set off the FFA.
Comment by Debs on August 12, 2014 at 10:13am
CJ my email is debs-007@tiscali.co.uk please contact me and i will send the fact sheet immediately.
Comment by Jules UK on August 12, 2014 at 9:27am
Hi CJ, Dr Farrant is a member of the steering group that I'm part of so he ought to know a lot about alopecia! You'll find from Debs' fact sheet that there,a a variety of treatments, none with proven effectiveness. The advice from Drs is always that you choose what you want to try. Difficult decisions. I'm seeing a new derm on Thurs, recommended by Dr Harries, at Solihull. So no more travelling to Salford.
CJ, I'm sorry you've got this but echo comments made by others. You will eventually reach a Point where you no longer dwell on it quite so much. To start with, though, it's hard. X
Comment by CJ on August 12, 2014 at 5:48am
Thanks for replying all. The doctor I am looking at seeing is Dr Paul Farrant. Has anyone heard of him? I can't get to Salford easily to see Dr Harries - if he even does private? Thanks Debs. Still trying to figure out the site so not found messages yet.
Comment by Celia on August 12, 2014 at 5:07am

Hello ladies.  I am due to see a new derm recommended by Dr Harries as I asked him to refer me to someone closer to home.  The name is Dr Iaisha Ali a female derm at Charing Cross - I see her in October.  Pam, your hairpiece did look good and I would not have known you were wearing one.  I know that Jules now wears one with success too.  Haven't quite got there yet.

Welcome CJ - whereabouts are you ?  Perhaps we ladies with close M25 access would like to get together again before the end of the summer ?

XX

Comment by Debs on August 12, 2014 at 5:02am
CJ I have sent you a message but if you do not pick it up please email me and I will send you a fact sheet I have typed up to bet yourself up to speed.
Comment by Pam on August 12, 2014 at 4:00am

I do agree with the comments made by Meme. My FFA has been with me for some years, and at the end of the day you just have to come to terms with it, and not let it ruin your life too much!

I have been extremely pleased with my hairpiece, as it has done what I wanted ie make me look a lot better and give me back my confidence!

However, there are some obvious limitations as well, for instance, I couldn`t leap into the surf this summer like I usually have in the past! I can swim in the sea, but too much surfing in strong waves could just be a bit too much.

But hey ho, my friend can`t surf any longer either as she has had ear surgery which has gone wrong, and left her deaf in one ear, and sea water could cause further damage.

So we all have to cope with some issues in life, and the one I have been handed out is FFA. I hate it, but I won`t let it wreck everything for me!

 

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