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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Hi Kaz, Welcome to our group. Sorry to hear about your ffa diagnosis. I was diagnosed in March 2013 & have been taking Plaquenil for almost 11 months. My doctor started me off with one pill per day for two weeks to allow time for my body to adjust. I have been taking it twice a day since then. My side effects have been minimal. I had strange (not scary) dreams and a little trouble falling asleep for the first month. My blood work has always been fine, & I haven't had any trouble with my vision. I think the Plaquenil and topical steroid combination I'm using are helping, but it works so slow that you barely notice. My scalp is much less tender than a year ago. It took me about nine months to see a change in the hair loss. I'm still shedding, but not as much. Good luck to you and God bless.
I know exactly when I started FFA. It was one month after my husband's death I noticed two round spots one by the widow's peak and the other behind the right ear. There was a third tiny spot by my right temple. I did nothing for 8 months thinking it would come back. After 8 months I showed it to my derm who diagnosed and injected immediately. Within a week, I lost my entire hairline in the injected areas. About one inch. Then later I lost around the ears. I also have a dent in the right temple. I cover it with hair that I pull forward. I do not want to take any drugs internally since my family have a history of several life threatening illness. Since the injections are causing dents and the hair is falling out anyway, I will not be seeking continued treatment. I am trying to concentrate on hairstyles to disguise the choppy hairline until I can no longer disguise it. I am interested in hearing from anyone who have used hairpieces effectively.
Love to all you brave girls,
Jen.
I know what you mean. I am constantly looking at womans hairlines. I have been tempted sometimes to approach them for a chat but have never had the courage. I went for nearly 10 years without knowing what my condition was so maybe they are in the same situation.
Hi Pam,
I do the same thing. I am obsessed with looking at hairlines. I see so many women with high hairlines that I wonder if they realize that they may have FFA. Are you still happy with the small hairpieces?
I was out at an event yesterday (an auction actually!) and noticed TWO women in the crowd with noticeable FFA.
I know that my sensors are out to recognise it, but it does make me wonder if it is getting more common. Do other people see it too?
(I should be paying attention to the auction prices, but can`t help looking at hair conditions!)
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