Comment

Comment by Jen on May 14, 2014 at 3:12am

Hi Pam,

I do the same thing. I am obsessed with looking at hairlines. I see so many women with high hairlines that  I wonder if they realize that they may have FFA. Are you still happy with the small hairpieces?

Comment by Pam on May 14, 2014 at 3:06am

I was out at an event yesterday (an auction actually!) and noticed TWO women in the crowd with noticeable FFA.

I know that my sensors are out to recognise it, but it does make me wonder if it is getting more common. Do other people see it too?

(I should be paying attention to the auction prices, but can`t help looking at hair conditions!)

Comment by Mary on May 12, 2014 at 7:19pm

Thanks Brenda for the welcome.

Comment by Brenda, IL US on May 12, 2014 at 4:30pm

Hi Curlytop!  Sorry about your FFA diagnosis but welcome to the group.

Comment by April on May 11, 2014 at 2:45pm

Welcome Curlytop! You will find a lot of support and information here. Post any questions you have, there are many knowledgeable ladies here: )

Comment by Mary on May 10, 2014 at 1:20pm

Been fairly recently diagnosed with FFA. Currently on anti malarial treatment and topical cream. Browsing the internet and found this site.

Comment by Celia on May 10, 2014 at 10:56am

Meme - welcome back.  These lengthy waits are too much sometimes.  I have had problems asking questions and then having to ring back and again and so on and just being fobbed off.  It's called being inefficient I think.

Anyway - glad your internet is back - what did we do without it for so many years ?

x

Comment by Meme on May 10, 2014 at 5:56am

C,

Hello everyone, I have been off line for a while thanks to a boy racer who decided to take out the telegraph pole up the road and leave us all without the internet...bless him. The joys of living in a Suffolk village.

I noticed C that you said your results had come back with low Zinc. I had that as well, in fact I can remember telling the ladies when we all met up about my trip to see Dr Chris at Guy’s and the blood tests he did that came back with low iron, Zinc and B12. They were taken back in February. When I got the results, I made an appointment to see my doctor but he was away so had to wait 4 weeks. When I did see him he insisted that I have the tests run again at my local hospital. Made another appointment to see doctor to discuss results and had to wait another 3 weeks. I was ready for a fight when I went in but finally on Tuesday he agreed that I need iron, zinc and B12 (had first B12 shot yesterday) but as I cannot absorb vitamins and minerals in my gut he is also sending me back to Guy’s to see a gut specialist. Phew!

Hope all are keeping chin’s up. 

meme

Comment by Annie on May 5, 2014 at 2:58pm

 April, I'm currently using Bethamethasone Dipropionate 5% topical.  I used Clobetesol for two months.  I think it helped with the inflammation, but it was extremely irritating to my scalp, so my doctor switched to the Bethamethasone.  It's a little oilier (plus more expensive), & not quite as irritating.  I definitely think that using a topical makes a big difference for me.  I saw my doctor for my one-month check-up after starting Plaquenil and mentioned that the Clobetesol irritated my scalp.  He said I didn't need to use  a topical since I had very little redness & inflammation.  When I saw him three months later, the ffa was much, much worse.  That's when he gave me a prescription for Bethamethasone.   

Comment by April on May 5, 2014 at 1:56pm

Annie, what topical are you using?

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