Alopecia World
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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 599
Latest Activity: Jul 25
Discussion Forum
Dermatologists who specialize in alopecia?
Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
Food Allergy Testing question
Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
Hair Toppers
Started by Leni. Last reply by Lang Bozic May 22. 10 Replies 0 Likes
I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue
Get Ahead of Hairloss Event plus new information on FFA
Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies 1 Like
Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue
Comment Wall
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Comment by jess on April 21, 2014 at 3:20pm
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How can you tell if the FFA is still active? Brenda, you said your doc said your FFA went to the crown of your head. Is your scalp just red in appearance? What does active FFA look like? Has anyone known someone that has had a hair transplant?
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Wonderful comments and tips everyone! I am going to go find some nice headbands:) Happy Easter!
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Comment by Anne Louise on April 20, 2014 at 7:50am
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Happy Easter to everyone!
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Comment by Liz on April 20, 2014 at 7:07am
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Happy Easter xx
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Comment by Debs on April 20, 2014 at 2:42am
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Happy Easter to you all.
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Comment by Mandy on April 18, 2014 at 11:59am
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I totally agree ladies... Blessed with good health a few aches and pains but I am in my fifties lol... So many friends have fought cancer or have lost family... Helps to put things into prospective!
Love my hair and losing it makes me sad... But I have sooooo many things to be grateful for... Happy Easter xxx
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Anne,
I got my diagnosis on the one year anniversary of the Newtown school shooting and I just told myself that everyone of those moms would give every hair on their head to have their little one back!
MJ
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I agree. This past Tuesday, when I was supposed to have my eyebrows tattooed, was the one year anniversary of the marathon bombing here in Boston. One family lost their sweet eight year old boy, countless others lost limbs...it definitely put the loss of my eyebrows in perspective.
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Comment by Kath UK on April 17, 2014 at 5:13pm
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Pam - I watched the London Marathon on TV and felt humbled by the sheer courage of the disabled runners. There are certainly worse things than hair loss - upsetting though it is. I'm particularly aware of this because my daughter has MS (Multiple Sclerosis) and has to cope with that (plus a job and two young children). When I think about her - and all the other people who live with serious, disabling conditions - it certainly makes me feel I should be able to cope with losing my hair.
(But I still wish I didn't have FFA......).
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My daughter ran the London Marathon last weekend, and we went up to watch. It really brought tears to my eyes seeing people run who had lost both legs, and arms, and eyesight, and it made me feel sure that if they can overcome such things in life and go on to run a marathon, then I can cope with some hairloss ... Happy Easter everyone!
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