Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Celia on March 19, 2014 at 9:45am

Valerie - we are having a get together here at my home on Saturday - it will be our third and you are most welcome to join us.  I live just close to the Beaconsfield turn off from the M40 so the journey is easy.  There are 2 others coming from B'ham area.  It would be lovely to meet you./  I guess you don't know anyone else with FFA - it can be a lonely journey on your own.  Let me know and I will send you the postcode and details if you think you would like to do this - at present - there will be 8 of us including me.  I am making lunch for you all. x

Comment by Valerie on March 19, 2014 at 8:57am
Hi All, joined your group yesterday. Been suffering from FFA for two years and currently taking Doxy once a day. No other medication prescribed by Dermatologist. Thinking of stopping Doxy as it doesn't seem to help much.
I live in Birmingham so if there is anyone in the group who is local I would love to meet up.
Comment by Celia on March 19, 2014 at 8:51am

Welcome to Valerie - we hope you find our group helpful with info and supportive.  Where do you live ?

Comment by Celia on March 18, 2014 at 6:08pm

Hi Meme - yes, I am doing lunch - if you arrive any time after 10.30 that would be great.  I have no plan on how long our get together will last, but I'm sure your husband will enjoy the local hostelry !  Look forward to seeing you on Saturday.

Comment by Meme on March 18, 2014 at 3:55pm

Sorry

Meant to say can I bring anything and what time do you want to kick us out. My very unsubtle way of asking if you are planning lunch. LOL

Just in case you are, please do not worry about me. I am a coeliac and lactose intolerant, in others words a complete nightmare to feed, so if you are panning anything I can bring my own, but I do not want to offend. It's just that I have learnt from experience that it is better to say up front than refuse hospitality on the day.

Husband is driving over with me (over protective, bless him) and then planning to go to your local pub  (he's got it all worked out) to read his book. Think he's secretly looking forward to the peace and quiet.

meme x

 

 

 

Comment by Meme on March 18, 2014 at 2:41pm

Hi C

All information received, thank you. looking forward to meeting you and the other ladies.

meme x

Comment by Celia on March 18, 2014 at 2:29pm

Have sent you details Meme - hope you get them and please let me know if you need more info. x

Comment by Meme on March 18, 2014 at 1:47pm

Hi C

I hit the negative GP/Hospital wall about 10 years ago, LOL. Have given up with them. Find you lot more informative!

Can I ask, how will you let us know directions and time for Saturday. 

 

Meme x 

Comment by Celia on March 17, 2014 at 2:48pm

Oh ! Claire !  Thank you so much for making the effort ! Just get here safely and we all look forward to meeting you.  You asked about what to bring - just yourself, please - you will have all made a great effort to get over here, and it will be worthwhile, I'm sure ! x

Comment by claire on March 17, 2014 at 2:39pm

Hi Celia just to let you know I am working overnight on Friday and finish at about 9.15am. I am about 80 miles away and the route finder says it will take about one and half hours. Will therefore be will you all just as soon as i can. Looking forward to the get together.  Claire.

 

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