Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Celia on March 19, 2014 at 8:51am

Welcome to Valerie - we hope you find our group helpful with info and supportive.  Where do you live ?

Comment by Celia on March 18, 2014 at 6:08pm

Hi Meme - yes, I am doing lunch - if you arrive any time after 10.30 that would be great.  I have no plan on how long our get together will last, but I'm sure your husband will enjoy the local hostelry !  Look forward to seeing you on Saturday.

Comment by Meme on March 18, 2014 at 3:55pm

Sorry

Meant to say can I bring anything and what time do you want to kick us out. My very unsubtle way of asking if you are planning lunch. LOL

Just in case you are, please do not worry about me. I am a coeliac and lactose intolerant, in others words a complete nightmare to feed, so if you are panning anything I can bring my own, but I do not want to offend. It's just that I have learnt from experience that it is better to say up front than refuse hospitality on the day.

Husband is driving over with me (over protective, bless him) and then planning to go to your local pub  (he's got it all worked out) to read his book. Think he's secretly looking forward to the peace and quiet.

meme x

 

 

 

Comment by Meme on March 18, 2014 at 2:41pm

Hi C

All information received, thank you. looking forward to meeting you and the other ladies.

meme x

Comment by Celia on March 18, 2014 at 2:29pm

Have sent you details Meme - hope you get them and please let me know if you need more info. x

Comment by Meme on March 18, 2014 at 1:47pm

Hi C

I hit the negative GP/Hospital wall about 10 years ago, LOL. Have given up with them. Find you lot more informative!

Can I ask, how will you let us know directions and time for Saturday. 

 

Meme x 

Comment by Celia on March 17, 2014 at 2:48pm

Oh ! Claire !  Thank you so much for making the effort ! Just get here safely and we all look forward to meeting you.  You asked about what to bring - just yourself, please - you will have all made a great effort to get over here, and it will be worthwhile, I'm sure ! x

Comment by claire on March 17, 2014 at 2:39pm

Hi Celia just to let you know I am working overnight on Friday and finish at about 9.15am. I am about 80 miles away and the route finder says it will take about one and half hours. Will therefore be will you all just as soon as i can. Looking forward to the get together.  Claire.

Comment by Annie on March 17, 2014 at 1:50pm

Hi all, just wanted to let you know that I received a buy one / get one free e-mail offer from DermStore for SmartBrow eyebrow filler.  I was able to get two for $24.95 + tax with free shipping.  The promo code is BOGOBLON for the blonde color.  I would imagine the other color codes are BOGO followed by the first four letters of the color description.  I don't know if this offer is available for everyone, but it might be a good opportunity to try it out.  By the way, I find the colors run a little dark, so the blonde color is perfect with my medium brown hair.

Comment by Celia on March 17, 2014 at 1:38pm

Am I still correct with this list for Sat ? Jules, Pam, Polly, Caro, Claire, Meme, Paula. Please,  if there are any others who would care to join us, starting from10.30am - you are very welcome.  A short way off the M40 - Junction 2. x

 

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