Comment

Comment by Annie on March 17, 2014 at 1:50pm

Hi all, just wanted to let you know that I received a buy one / get one free e-mail offer from DermStore for SmartBrow eyebrow filler.  I was able to get two for $24.95 + tax with free shipping.  The promo code is BOGOBLON for the blonde color.  I would imagine the other color codes are BOGO followed by the first four letters of the color description.  I don't know if this offer is available for everyone, but it might be a good opportunity to try it out.  By the way, I find the colors run a little dark, so the blonde color is perfect with my medium brown hair.

Comment by Celia on March 17, 2014 at 1:38pm

Am I still correct with this list for Sat ? Jules, Pam, Polly, Caro, Claire, Meme, Paula. Please,  if there are any others who would care to join us, starting from10.30am - you are very welcome.  A short way off the M40 - Junction 2. x

Comment by Celia on March 17, 2014 at 10:03am

Anyone who still needs directions as to how to get here on Sat 22nd - please let me know - here -  and I will e mail you on this site.  Thank you !

Comment by Celia on March 17, 2014 at 10:01am

Hi Pam - look forward to seeing you and other ladies. Let's say any time from 10.30 on. Julie has very kindly agreed to put an agenda together and she said she would keep checking for any items that may be suggested here.  I would have done this, but my WORD has timed out...........  I hope this doesn't sounds too formal but I just thought it might help for the future to have some kind of focus.  I have half a mind to ask the GP to come along and meet us all, but,  actually A - it's a weekend and B - he probably is not so interested.   I know that Dr Harries in Salford attends a support group who meet regularly 'up there'.  I wonder if Dr Cheung might have some interest , perhaps next time round in 'the summer'.  Just a thought. x

Comment by Pam on March 17, 2014 at 9:21am

Celia I cant believe your GP would be negative about this forum -  my local GP who specialises in dermatology thinks that the forum is an excellent idea, both to share information, and also as a support network.

What time are we meeting on Saturday?

Comment by Celia on March 17, 2014 at 4:50am

Debs - I just read your post on Jen S' discussion.  Interesting we are both not taking the meds.  Lymecycline did not agree with me at all in that it gave me tummy ache each time after I took it.

I won't go to the GP any more, I'll go to a different one.  Wouldn't you think that if they didn't know about a condition, their professional curiosity might lead them to find out ?  I guess they encounter this so infrequently................ x

Comment by Debs on March 17, 2014 at 3:23am

Hi C, I had a terrible experience with a GP at my practice when I was first diagnosed. It added greatly to the shock of the diagnosis and I wrote a letter of complaint to the practice manager. It is galling when this group shares valid medical info given to use by our derms and by CARF newsletters and other respected medical sources.

It is very unprofessional of your GP to speak to you like this and he could have learnt a great deal about FFA from the ladies in this group.

I hope you feel a better now after this unpleasant incident. X

Comment by Jules UK on March 16, 2014 at 3:29pm

How infuriating! I wonder how clued up this GP is on our condition and the range of treatment options we're faced with, none of which have any tested evidence to back them up. C, it's understandable you were upset.
Of course I'll be pleased to type up an agenda. I'll keep an eye on posts here for suggestions. X

Comment by Celia on March 16, 2014 at 3:18pm

Hello everybody.  I am still reeling from a very negative meeting with my GP 10 days ago.  He was very dismissive about any form of forum/they don't know what they're talking about etc etc.  He was very animated to the point where I said that I had to leave.  He felt that any info we have on this 'kind of forum' is probably incorrect etc.  I was very upset but managed to leave with dignity until I got to the car. I wonder if any of you have hit a GP brick wall ever ?

Jules, I wonder if you might be able to type up an agenda for next Sat - my WORD facility is gone since I actually use it so little. Thank you in advance !

Perhaps over the next 2/3 days those of you who are coming over next Sat might like to let us know agenda items.  Please, if anyone does not know directions - let me know via this site. So looking forward to seeing you all - wish we could be meeting up in better circumstances, but I will try to make the day pleasurable for you.  If there are any dietary requirements please let me know and I'll try to make sure you have whatever you need/like. xx C

Comment by Jen S. on March 14, 2014 at 10:01pm

Thank you MJ and Jules.  I can't tell you how much I needed to hear from y'all.  You are both spot.  MJ - I think I will look into the book.  I am looking forward to talking with you though out this.  Long day of tears and worry -- so, I'll write more later.  It's 10:00PM in GA.  Good night and take care.

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