Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Annie on March 6, 2014 at 4:28pm

It does take a few tries to get the hang of applying SmartBrow.  You want to make sure you get it right while it's still wet because it won't blend after it dries.    You can go online to see a demonstration on how to apply it.

Comment by christiekd on March 6, 2014 at 4:19pm

I use SmartBrow as well.  I think it is the best product for eyelashes.  I have one eyebrow that is more thinned than the other one.  So, I just use the SmartBrow and then add a little powder to the thinner eyebrow.  This works great because the gel is still a little wet and it sticks very well and stays in place (I work out a lot and can even wipe the sweat and it stays on).  I use a very thin brush for the powder so it looks very natural. 

Comment by Rita - Canada on March 6, 2014 at 3:37pm
Thanks Annie,I assume you feel it appears natural as you purchased it twice? Did it take some getting used to, applying it to get that natural look
Comment by Annie on March 6, 2014 at 2:26pm

I have used powder, but it doesn't seem to cover the bare areas as well as the SmartBrow.  The SmartBrow is much like mascara which thickens and stays in place until you take it off with the makeup remover (included with purchase).  It has a tiny brush on one side to fill in bare areas and a mascara-type wand to coat the entire brow area on the other end.  However, as much as I like the product, I've only purchased it twice because it's so darn expensive.  One tube is $29.95, and it lasts only about 6-8 weeks.   

Comment by Rita - Canada on March 6, 2014 at 1:25pm
I am wondering whether powder or smart-brow (I've seen people mention on this site), looks more natural when brows are sparse. If smart-brow is gel type, salesgirl @ Ulta said their gel brand for brows is meant when just a little fill in is needed.
Comment by Alice on March 6, 2014 at 1:08pm

I have had good luck with using Elidel cream on my brows. On was nearly gone but now I just use a little eye shadow to fill in. The powder works better for me tan a pencil.

Comment by Annie on March 6, 2014 at 10:54am

I started using 5% Rogaine foam eyebrows as well as my head as soon as I was diagnosed with ffa almost a year ago.   My eyebrows have gotten thinner over the years, but my doctor said that they were not affected by the ffa yet.  My eyebrows and eyelashes have both gotten thicker as a result.  I don't use the Rogaine around my eyes, but my eyelashes have gotten so long that I now have a problem with my mascara leaving dots all around my eyes before it dries.  I did have an initial shed a couple weeks after starting Rogaine, but I never noticed losing any eyebrows. 

Comment by MJ on March 6, 2014 at 7:53am
Since I am still at the stage where I look at everyone's hair everywhere I go, I have two observations. First, I wonder how many cases od FFA are undiagnosed. I see a lot of thinning hairlines. Second, they must be making really natural looking wigs these days, because I never see anyone with what appears to be a wig.
Comment by claire on March 6, 2014 at 4:33am

Does anyone know if any of this stuff is available on prescription? I have seen some eyelash serum available on line and I am thinking of buying some. it all seems so hit and miss as to what to do. 

Comment by Jules UK on March 6, 2014 at 4:18am
I tried Regaine on my brows but it made no difference. I think it's helping slow down front hairloss. Can't be sure of course. I had my brows tattooed and they're wonderful!
 

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