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Comment by Plf on March 20, 2019 at 8:30pm

Good on you spoilmygurl, and good luck at appointment, they charge like a wounded bull so yes have your questions written down.  Hope you get some answers

Comment by spoilmygurl on March 20, 2019 at 7:35pm

Thank you 3 for your replies! A dermatologist near me must of had a cancellation because an appt opened up for Monday. I snapped it up because I was told first week of May last time I tried to book. I will be sure to take a list of questions when I go next week. 

Comment by Plf on March 20, 2019 at 7:23pm

Hi spoilmygirl, I too cannot answer all your questions, I probably have had FFA for about six years?  Hard to know but I remember a hair dresser telling me the front Bart of my hair line was all inflamed, not associated with any itch or tenderness.  I just applied some cortisone I had and forgot about it.  Fast forward to Christmas 2017, and my new hair dresser was shocked to tell me I had lost centmeters from front of hair line.  I hadn't noticed.  I also have list all arm hair, eye brow s thinning, but think have improved since castor oil application.  Frontal hair loss may still be occurring but at a very un  noticeable rate, fingers crossed it has burnt out.  I don't ever see fall out of hair, neither does my hair dresser when washing my hair.

Dermatologist Said I also have  female patterned hair loss( genetic) which I am drinking spearmint tea in the hope to stop or slow down its progression.

Good luck, and whilst I'm a little calmer now, I initially was an emotional mess, I feel for all the lovely women whom have FFA, and thank them for their support thru this group

Comment by Kandy15 on March 20, 2019 at 11:05am

My left eyebrow is missing just on the outer third of it.  Both eyebrows are sparse but still there enough that I have a brow box and darken them to look like I have something.  Thinking microblading may be in my future. My eyelashes are still there but definitely not full and lush like they used to be.  I am 61 and have noticed that my older sisters eyelashes are not like they used to be, so I hope it's just an age thing.  Maybe FFA will spare them but you never know with this condition.  It seems like every morning I see something else that has diminished.  FFA is like a thief in the night, but the funny thing is I never see lost hair on my pillow.  I just notice changes to my hairline, brows, lashes and even skin texture when I look in the mirror.  It makes me sad. I so miss the happy, peppy me.  Now I don't want to go anywhere or do anything.  I'm trying hard to get to the acceptance stage.  Maybe I will find a sort of peace there.   

Comment by Claire Julia on March 20, 2019 at 5:05am

I don't know the answers to your questions. I can only talk from my own experience. All my leg and eyebrow hair has gone. Still have some eyelashes. I have invested in the interlace system which is the best thing I've done. Expensive but worth it.

i don't take any medication now just antihistamines. I've had the condition for nearly 7 years. It's a pain but I have mostly come to terms with it.

best wishes.

Comment by spoilmygurl on March 19, 2019 at 4:10pm

I know I have a lot of questions but I’m new to the club. I couldn’t find an answer to this. I have lost ALL of my eyebrow and eyelash hair. Does FFA scar those follicles too? So they will never grow back? Or does that type of skin not scar? Also, I’ve lost ALL of my arm, leg and armpit hair. Not that I really care, but I’m curious- does that skin scar? Or has the follicle just gone dormant? Is there a way to tell if skin is scarred by looking at it with the naked eye? Or is a special tool required? Thanks!

Comment by Toby on March 18, 2019 at 6:28am

Karen, thank you so much for your reply on finasteride! I really appreciate it!  

Comment by KarenD on March 17, 2019 at 9:34pm

Hi Toby,

I have been on finasteride for a couple of years now.  I sometimes do feel like my memory or recall is not what it once was, but I am 61 and I notice both of my sister's memories, who are a bit older than me, aren't quite as sharp either, so I have just chalked it up to aging. It is really hard to tell whether these drugs cause side effects or not, and how long to continue with them.  I asked my internist if he had any concerns with me taking it and he was fine with it.  I actually feel like mostly my lack of recall stems from the fact that we multi-task so much and that I don't truly concentrate on what I am reading or listening to.  I find if I do pay attention and focus my memory seems fine, so I would say that I don't think the finasteride has diminished my recall/memory.  Just some aging issues!

Comment by Toby on March 15, 2019 at 5:00pm

Thanks for letting us know that Dr Donovan’s website posted the genome study in speakeasy. What does everyone think of the JAK inhibitor treatment?  Dr Donovan has info on JAK inhibitors and it seems the side effects include reduced red and white blood cells and platelets, higher cholesterol and other side effects that seem serious to me. Please take a look at Dr Donovan’s website and his treatment handout on JAK inhibitor.

i would really like some group input on finasteride. I have been on finasteride for at least 9 months and my dermatologist believes it is helping me. Since the genome article I have to agree.  I feel it is affecting my memory. I always was a bright person. When I went thru menopause, I felt like it took a few seconds to recall memory sometimes. Now I feel like the memory is just not there to be recalled.  Alzheimer’s does NOT run in my family. I am concerned for the future and I need to be independent the rest of my life. Has anyone else noticed reduced memory recall - short term memory that is also on finasteride.  I would really appreciate your input. Thanks so much.

Comment by illustr8r on March 14, 2019 at 10:20pm

OMG @spoilmygurl! I’m so sorry to hear that! :( I don’t use Latisse daily. Once a week. I stopped it for a long time but my lashes started to shed. Castor oil works on lashes too so I sweep a teeny amount across my brow and lashes at night. 

It sounds like you react easily to things. I would do a test patch first before massaging a decent amount of it into your scalp. My dermatologist has several ladies who’ve had success with Castor oil. They’ve decided against meds like me (except Clobetasol). We just start using it after doing research and told her afterwards!

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