Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by MJ on February 27, 2014 at 7:08am
Debs, I wasn't born by C Section either, but what you are talking about sounds alot like leaky gut syndrome,which is an over abundance of bad bacteria. I started reading about it when I was first diagnosed, as I have had gastrointestinal issues for years. Probably from a lifetime of eating wrong. I believe overuse of antibiotics can cause the condition as well.
MJ
Comment by Jules UK on February 27, 2014 at 5:51am
Hi Debs, I wasn't born by C section but my daughter was and she suffers from numerous allergies. I'd never made that connection.
Liz, is your hair still growing back? I do hope so! X
Comment by Celia on February 27, 2014 at 5:50am

Hi Liz - are you joining us on the 22nd. Celia

Comment by Liz on February 27, 2014 at 5:28am

Hi Debs. I wasn't born by C Section and neither was my mum x

Comment by Debs on February 27, 2014 at 5:23am
Dysbiosis in gut caused by being born by C section. I just saw a discussion on TV where a doctor spoke about dysbiosis (this means your bacteria in your gut has the wrong type of bacteria and is harmful ) when you are born by C section, which I was back in 1963, you do t receive your mothers healthy gut bacteria during birth and this lasts a lifetime and is proven to cause obesity, Crohns etc.. Your immune system is affected. It just wonder his many of us with FFA were born by C section ?? This might just be a coincidence but since I was born by C section I wanted to ask the rest of you ladies.
Comment by Meme on February 27, 2014 at 4:22am

Hello C

I would be interested to hear about medication that everyone thinks has or hasn’t worked. Also ideas and experiences on how to deal with the hair such as weaves, wigs etc; it would be good to get everyone’s thoughts. 

meme

Comment by claire on February 26, 2014 at 5:44am

Dear MJ,

I also take antihistamines every day and have had allergies all my life. No one has ever found out what causes them. On 3 occasions I have been in hospital and they tell me it Idiopathic anafelaxis- very frustrating. Maybe this would be something to discuss at the get together?

Comment by Celia on February 24, 2014 at 6:00am

               

Jules, Pam, Polly, Caro, Claire, Meme and also Cathy are all OK for Saturday 22nd.  Please let me know if I have missed anybody - just updating you.  Thought we might try an agenda for an hour or so - not toooooooooooo formal before lunch !  If you have any items for this, please let me know.  Thank you !

Comment by MJ on February 20, 2014 at 4:31pm
Thanks. I will look up Dr. Price. I would like to know if anyone in the states is planning on attending the CARF conference in Chicago..I would like to attend but will not be ablr to.
Comment by Debs on February 20, 2014 at 9:05am
Dr Vera Price in the USA thinks FFA results from an environmental insult and is researching the role of dioxins. Dr Price is part if the CARF organisation and this info was passed to me from one of our group in the USA that has attended support group meetings with Dr Price. Research is happening into a trigger.
 

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