Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Brenda, IL US on February 5, 2014 at 9:02pm

If anyone is experiencing any type of vision problem, such as blurring or trouble focusing please get to an eye Dr.  This is a serious side affect of plaquenil.

Comment by Rita - Canada on February 5, 2014 at 8:03pm

Sam, I have only started the rogaine lately but haven't been all that good about it. I never intended to do it twice a day, only the once.  Then when I put the tumeric fluid on (trying this instead of Clobetasol for inflammation on scalp), I feel it's put down a layer on the scalp that  the foam will not be able to penetrate through. I just watched a video online that mentions the scalp should be clean and none of the topik cover up should be there and that totally make sense.  I do use Topik to help disguise the hair loss at times.  I don't know, it's all a guessing game isn't it. No shedding yet as just started but I just know I will panic as well, too precious little there to start with.

Comment by Sam on February 5, 2014 at 7:49pm
Thanks ladies. Gosh, I can't seem to get over the original panic. I am sure the starting and stopping is not good either. Any estimates on how long until you noticed the regrowth? I that would help me stick it out until I see that but it stresses me out so much to see it fall out.
Comment by Annie on February 5, 2014 at 12:40pm

Sam, my shedding doubled about 2 weeks after I started using 5% rogaine foam.  It lasted for about 2 - 3 weeks, then I went back to my normal ffa shed.  There wasn't enough shedding to notice a difference in the volume of my hair, but it did freak me out at first.  Shedding is supposed to be a good sign that it's working for you by stimulating the hair follicles to replace old "dead" hairs with new and improved ones.  I also had itching and discomfort for about a month while my scalp adjusted to the rogaine, but I'm very happy with the results after 10 months of use. 

Comment by Jules UK on February 5, 2014 at 5:03am
Hi Sam, I did lose a lot more hair as soon as I started using Regaine. It lasted a few weeks. I panicked and brought forward my derm appt. however, it eased off and seemed to stabilise, until the sugar rush that is Christmas! Things have calmed down a little since returning to a more "measured" diet. But it was interesting to see how much of an effect diet possibly had.
Comment by Marian on February 4, 2014 at 11:18pm
Hi, I have been using rogaine 5% since early October and didn't really experience the shed you are describing although I have heard that it happens. I think my hair feels thicker and I do see hair growth-not where I need it but I'll take anything at this point!
Comment by Sam on February 4, 2014 at 11:06pm
Does anyone have the heavy shed with Rogaine when you started it and if so, how long did it last? I started using it twice but stopped both times because I start losing even more hair than before. I get panicked and stop. Just curious if anyone else has this problem. Thanks!
Comment by Alice on February 4, 2014 at 8:33am

Jean, as I understand it both Regaine and Rogaine are brand names for minoxidil, but one is sold in the UK and the other in the US.

Comment by Jean on February 4, 2014 at 4:33am

Please can you tell me if Regaine and Rogaine are the same product?

Many thanks

Comment by Maddy, California, U.S. on February 3, 2014 at 6:16pm

I know my dermatologist said that the foam is usually less irritating.

 

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