Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Rita - Canada on February 3, 2014 at 5:54pm
Thanks Maddy, just found article that describes the liquid as being oilier than the foam so I will persevere.
Comment by Maddy, California, U.S. on February 3, 2014 at 5:38pm

Rita, I have used both, and honestly find that there is not much difference between the foam and liquid in regards to how often my hair needs to be washed. I think the liquid probably does go on a bit easier, but I find that it is also quite a bit messier to apply. I have spilled the bottle on accident a couple of times too :(.

Comment by Rita - Canada on February 3, 2014 at 5:10pm
MJ, I've only used Rogaine foam for a week now and although no flaking, find the foam very difficult to apply just to the roots. It also dulls the hair so that it needs washing daily which i really don't want to do as that is when more hair sheds.
Comment by Rita - Canada on February 3, 2014 at 5:01pm
To those ladies that have used both the Rogaine 5% foam & the liquid, which type would you say have made it necessary to wash more frequently?
Comment by Maddy, California, U.S. on February 3, 2014 at 4:55pm

Hi MJ, I have not seen any white flaking with the Rogaine so far.

Comment by MJ on February 3, 2014 at 4:33pm
Is anyone else getting white flaking from the rogaine?
Comment by Annie on February 3, 2014 at 11:26am

Hi all, I'd like to weigh in regarding the use of Rogaine.  I've been using 5% generic Rogaine foam for 10 months now.  I used it twice a day for the first six weeks, then once a day since then per my doctor's instructions.  I started out just using it around my face and on top of my head where my doctor said my hair was getting a little thin.  I started sprouting hair in less than a week in areas that were not heavily scarred by the ffa.  I was so pleased with the results that I started using it on my entire scalp at my hairdresser's suggestion.  I had my six-week highlight and color appointment last Friday, and my hairdresser of 20 years said my hair has never been thicker.  Of course, my hair isn't as thick in the areas where the ffa is active, but my hairline has receded very little since my diagnosis in March, 2013.  I've been using the foam version, but plan to try the liquid when my current supply runs out.  The foam builds up on my hair and leaves it a little dull, and I wonder if it's the reason for the extreme static electricity I've been experiencing.  I'll let you know how I like the liquid.

Comment by Pam on February 3, 2014 at 7:58am

Yes, I used my prescriptions towards the cost of my hairpiece!

Comment by Jules UK on February 3, 2014 at 7:47am
Does anyone in the UK know whether prescriptions can be used towards a hairpiece?
Comment by Maddy, California, U.S. on February 1, 2014 at 5:31pm
I use the name brand.
 

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