Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

Comment Wall

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Comment by Rita - Canada on February 1, 2014 at 4:52pm

I am using the Rogaine brand and purchase from Costco.

Comment by MJ on February 1, 2014 at 4:05pm
I am using the name brand.
Comment by Alice on February 1, 2014 at 1:56pm

Are you all using the brand name Rogaine or the generic or store brand minoxidil?

Comment by Maddy, California, U.S. on February 1, 2014 at 12:16pm

I have been using Rogaine foam 5% for about 6 months now. For the first 3 months, I applied it twice a day, but after that just put it on once a day (evenings). My fringe has definitely not gotten any thinner and my hair behind the fringe seems to feel a bit thicker. It seems like it's a little easier to hide the real thin spots since I've been using it. But,like Jules said, who knows really what would be happening if we weren't using it. I don't find it a big deal to use..yes, I part my hair in stages put some on my scalp (the best I can) and rub it in. It does take about 5 minutes for me as well. I actually seem to switch back and forth between the foam and liquid. Right now, I seem to like the liquid.

Comment by MJ on February 1, 2014 at 11:39am
My derm has me using the 5% once a day for five days on and two days off.
Comment by Alice on February 1, 2014 at 11:09am

I have a very tender scalp and could not use clobetasol, so was advised to start w/ the 2% solution. So far, so good. I've been tilting my head back, working the dropper down to the scalp, then rubbing it around w/ my fingers. It takes less than a minute to apply. Right now, I'm using it 2x/day, as per pkg directions, but hope to advance to the 5% solution and use it less frequently. Does the 5% say to use it just once a day?

Comment by Rita - Canada on February 1, 2014 at 10:07am

Well it appears no matter whether one uses the foam or liquid, it should be applied by sectioning off your hair. Does everyone who uses rogaine, use it on a daily basis as suggested or every other day?

Comment by Polly UK on February 1, 2014 at 9:39am
Thanks Jules, I have a box of foam I bought a while ago and now my fringe has almost disappeared I'm going to give it a try! x
Comment by Jules UK on February 1, 2014 at 8:48am
I've been using the Regaine 5% foam for about 8 months. I part the hair in stages along the front hairline and rub it in to about a couple of inches back. If that makes sense. It takes about 5 mins. I don't know whether it's helping to thicken up the hair. It's the usual conundrum with FFA. Would I be losing hair even quicker without Regaine? I'll never know but now it's started, I dare not stop!
Comment by MJ on February 1, 2014 at 8:20am
Alice, i just stared the Rogaine few weeks ago so no results yet. By the way, I was told to use the men's 5%. I am going to try the liquid again. I thought of going to a hair supply store to see of the have the cotten strips that hairdressers used years and years ago around the face when I got permanents. Or maybe I just need to slow down and do little areas at a time..
 

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