Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Alice on February 1, 2014 at 8:05am

Thank you for your comments about Rogaine foam. I just started using the liquid and will stick with that form. I think foam might be easier for men with really short hair but the dropper method might work best for women. Are you actually growing hair with the Rogaine

Comment by Rita - Canada on January 31, 2014 at 9:00pm

Yes MJ, I just started using Rogaine foam as derm said it would be easier to apply.  Far from it I found as it just goes all over on top of the hair itself and difficult to get it down into the scalp. I would imagine one has to divide up your hair and apply in sections. What a job that would be on a daily basis. Derm said just put on & rub all over scalp but you'd have to put quite a lot to actually get it down  through the hair into the scalp.

Comment by MJ on January 31, 2014 at 7:19pm
Hi, for those using rogaine foam, do you notice any white flaking? I recently switched to the foam from the liquid. I did not notice flaking with the liquid. Could I just be putting too much on? Although I did not like trying to control the dripping with the liquid, I felt like it was easier to get on my scalp without my hair getting all in the way as it does with the foam. Any suggestions or comments, please? Thanks. MJ
Comment by Polly UK on January 30, 2014 at 3:13pm
Celia - Thank you and I've just sent you an email x
Comment by Jules UK on January 30, 2014 at 3:02pm
Thanks for the info, Pam. You've been really helpful. I'll give them a call.
Comment by Celia on January 30, 2014 at 2:56pm

Polly - that is great to hear your eyebrow tattoo went well. We are hoping to have a get together here again in Bucks when the weather is better - I'll send out a choice of dates as before and we'll make a best fit plan.  Looking forward to seeing you then,

Very best wishes.

Comment by Polly UK on January 30, 2014 at 2:20pm
Thanks Pam for the information about your hairpiece. The way my hair is going (literally)I will be needing something soon and the back of my hair is very thick so I'm sure a wig would be hot and uncomfortable. I had my eyebrows tattooed this week and although they're very dark at the moment I'm already enjoying them!
Comment by Pam on January 30, 2014 at 12:00pm

My hairpiece is supposed to last about a year, but if my hair recedes considerably during that time it will have to be made larger I suppose! It is all one piece, just a strip that goes across my forehead and sides exactly where I have lost my own hair.

I had it done by Rob Davidson-Lamb at Barefaced Medical Aesthetics, 127 Promenade, Cheltenham, GL50 1NW tel 01242 222690. They have a website giving more information on what they do.

Comment by Jules UK on January 30, 2014 at 6:46am
Hi Pam, do you know how long your hairpiece might last before it needs replacing? Is it all one piece? I'm think of visiting your salon to see whether a couple of taped on hairpieces would be suitable for covering my side hairloss, after watching a couple of youtube videos. Am still hoping that the front hairline may never catch up with the sides!!
Comment by Jen on January 29, 2014 at 10:40am

Hi Pam,

I too wish that you can share some pics.  It is very inspiring that you are able to find a way to live fully with FFA.  I cannot go to your hair guy since I am in Canada but it would be great if I can show it to someone here who could probably help me design a hairpiece for the front and temple hairline.

 

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