Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by MJ on January 24, 2014 at 12:40pm
Thanks Maddy. Do you shampoo your hair in the morning? I only like to shampoo my hair every other day or so. I decided to do my applications in the morning rather than bedtime, figuring they wouldn't get washed out on the mornings I shampoo. That is why I am trying to use both the clobetosol and rogaine in a way so as not to have a bad hair dsy. The nurse made it sound like the foam was easy to apply right from the applicator onto the roots. I will jave to keep experimenting. Do you use it on your eyebrows as well and have you noticed an improvement? MJ
Comment by Maddy, California, U.S. on January 24, 2014 at 11:47am

Hi MJ, I apply Rogaine 5% every night before bed (I applied it twice a day for the first three months though). I usually fill up the cap and then use my fingers to apply it to part lines all along my frontal scalp area, including both temples. I think it is thickening my existing hair (I've been using it for about six months now), which helps to cover thinning areas. I hope that helps. Maddy

Comment by MJ on January 24, 2014 at 11:21am
Can someone using the Rogaine 5 percent foam tell me how you apply it? I originally started last week on the liquid, and although I found it easy to apply to the scalp, it dripped alot. I just tried the foam, but according to the directions for men they use their hands to rub it into their scalp. I tried to apply it directly onto my scalp at part lines but often got too much foam out with a press. I style dry my hair, then put on the clobetosol liquid,then apply the rogaine after that has dried. Should i be liberally rubbing the foam into my scalp with my hands? I want to make sure Imam putting enough on to be beneficial without overdoing it. Also, I use a qtip to apply to my eyebrows. Any suggestions would be greatly appreciated. MJ
Comment by Rita - Canada on January 24, 2014 at 10:33am

Jean/Alice. This is exactly the dilemma I find myself in. I used Clobetasol for many months with no issues. Then I developed what my derm called, acne from Clobetasol. I have just purchased Rogaine 5% at the urging of my derm to try it and wasn't sure when to start with this bumpy & itchy irritated scalp situation.  I don't see the derm now for another 6 months which I find way too long since there's always a question which needs answering. It may be that even the derm wouldn't know how to answer to this problem.

Comment by Alice on January 24, 2014 at 8:34am

Jean, Do you know hat your doc meant about your scalp being "clear" before trying minoxidil, aka Regaine?  Think mst of us have the red, bumpy scalp that is indicative of FFA. I just started using the 2% recc by 2 derms, to see how I tolerate it. I'm starting it only on the sides, where the hair is thinnest but with no any obvious signs of inflammation. Has anyone else with an irritated scalp tried minoxidil?

Comment by MJ on January 23, 2014 at 6:31pm
Thanks Jean. I am going to look into it further.
MJ
Comment by Jean on January 23, 2014 at 5:02pm

MJ

The acupuncture is to help regulate my autoimmune system and improve my gut.  The Chinese practitioner said it would be a long process but I'd rather see him than subject my body to drugs which will probably do nothing for the FFA and may further weaken my dodgy immune system!

Jean

Comment by MJ on January 23, 2014 at 4:42pm
Jean, i have been thinking about trying acupuncture as well, but have not checked into it yet. Is it supposed to help with reducing inflammation in the body in general, or is it targeting something specific?
MJ
Comment by Jean on January 23, 2014 at 2:22pm

Saw my derm yesterday - my hairline hasn't receded any further but my hair has definitely thinned.  I asked about Regaine and she thought it might help but only if my scalp was clear, because it may irritate the redness.  She wanted to put me on steroids or long-term antibiotics but unless I have some assurance of a positive result, I'm not inclined to use powerful drugs in the HOPE they will slow down progression of the FFA.  Unfortunately, the derm couldn't give me this assurance.  I'm sticking with the acupuncture and sensible diet to improve my autoimmune system.,,,,,,,,, 

Comment by Meadow on January 23, 2014 at 3:59am

Hi, I have just been give L-Tyrosine to take for 3 months - it is an amino acid I believe, has anyone tried this?

 

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