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Comment by Rita - Canada on January 19, 2014 at 8:34pm

http://www.carfintl.org/_docs/newsletters/CARF_Newsletter15_Nov2013...

This website has a great deal of questions & answers for alopecia.

Comment by Rita - Canada on January 19, 2014 at 1:18pm

Hello Ann, I was on doxycycline 100mg per day for several mths. Also the clobetasol on scalp which she left it to me as to how often I applied. (Acutally got acne eventually from this lotion).  Then Derm said you can't be on doxy forever so she weaned me off by taking 100 mg ev. other day for a few mths and then my hair shedding seemed to lessen and only when I wash my hair do I lose more hair..  Derm said she'd leave a prescription on hold for doxy & if it should become worse again, back on for a good 3 mths then see her again. She said she normally works with 3 mth sessions of doxy after the first bout.  i never had a problem with the antibiotic but I did faithfully take a strong probiotic daily to avoid same.

Comment by Ann on January 19, 2014 at 12:44pm

Hello,  I know there has been many comments regarding various drugs that are taken for LPP/FFA.  I have been taking 200 mg of hydroxychloroquine for a few months.  My derm wanted to increase it to the therapeutic dose, 400 mg/day.  My GP was concerned because I have only one kidney.  My derm then recommended doxycycline, but I'm concerned about taking an antibiotic long term.   Has anyone come across this "complication" to taking meds?   I don't know what to do. 

Comment by Celia on January 19, 2014 at 7:40am

Liz - I never realised you have friends with FFA.  I hope that you all support each other well - I presume they are local to you ?   I guess when any new sufferers google the problem - the first face they see on this forum is MINE ! The reason being that I set up this group, thanks to Alopecia World.  There is no way that I know of to change it.  However my stance has always been to tell nobody what my problem is.  So - whilst friends may notice my hair is different - my plan is to start with thin wigs to match - eventually - and then - who knows. I think we have all learnt a lot from each other here and that must surely outweigh the downside that others may take a peek - BUT - only if you tell them.  Your friends with FFA will surely wish to join this forum and take advantage of the amount of knowledge here.  I am about to start with a new dermatologist.  He won't have the magic potion - but I hope to start over. x

Comment by Jean on January 19, 2014 at 6:09am

Just back from a fantastic holiday over Christmas and the New Year in Jamaica.  No real difference to the FFA I'm afraid (in fact I think my hair is getting thinner) but I'm seeing my specialist on Tuesday - not that she'll have anything else to offer!  Sorry to be a pain, Debs but please can you let me have your link for the terrific fact-sheet you put together.  It will be useful to show my derm what other's are trying.  Many thanks  Jean x

Comment by Annie on January 16, 2014 at 4:46pm

Thanks, MJ. 

Comment by MJ on January 16, 2014 at 4:44pm

Annie, Yes. She said I can use color over all but the frontal area affected by ffa. She said highlights are ok in the ffa area because they are wrapped in foil and do not get on the scalp.
MJ

Comment by Annie on January 16, 2014 at 10:34am

MJ, I have a question regarding your doctor's advice about coloring hair.  Does she recommend using foil highlights with no additional color in the areas affected by ffa?  My hairdresser does a weave with foil highlights, then uses a color over my entire head followed by a toner at the end to make the highlights appear more natural. 

Comment by Rita - Canada on January 13, 2014 at 8:20pm

Debs, I may be wrong but I believe you are using Tumeric essential oil and Rogaine 5% foam and if so, which do you apply first? 

Comment by jess on January 13, 2014 at 5:05pm

Has anyone ever experienced regrowth in areas where they have lost hair? Regrowth that has remained?

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