Comment

Comment by MJ on December 20, 2013 at 12:49pm

I was just reading back on some of these posts since I am still new to all this. I was particularly interested in the regimen you follow, Christie. I am only finishing my first week of clobetesol and although i am using a q tip very carefully applying it in my hairline, by the morning after two applications the prior day, my hair is very greasy. How are you able to then apply rogaine and retin on top of clobetesol? Or did I not read your post correctly? I am taking notes for my next doc appt. can you tell me a little more about how you apply these things? MJ

Comment by Celia on December 20, 2013 at 12:29pm

I'm sure we have all read the info regarding taking plaquenil and the side effects, but I've pasted this below.

This medication should not be used if you have certain medical conditions. Before using this medicine, consult your doctor or pharmacist if you have:

• certain eye problems (retinal or visual field problems from other aminoquinolines such as chloroquine)

Before using this medication, tell your doctor or pharmacist your medical history, especially of:

• alcohol dependency
• certain blood disorder (porphyria)
• certain genetic problem (G-6-PD deficiency)
• kidney disease
• liver disease
• certain skin problems (e.g., atopic dermatitis, psoriasis)

This drug may make you dizzy. Do not drive, use machinery, or do any activity that requires alertness until you are sure you can perform such activities safely. Avoid alcoholic beverages because they may increase your risk of liver problems while you are taking this drug.

As I said a few days ago. my GP said that it wasn't necessary to monitor liver and kidney function when on this drug.  I will ask him to explain this further for me.  I have asked to have copies on my test results done by the dermatologist.  Do the results of these tests go to GPs automatically for anyone in UK I wonder ?

Comment by christiekd on December 20, 2013 at 11:52am

Sorry to hear this Rebecca!  If I were you, I would not do anything without further discussing it with your GP.  Maybe your levels are not significantly higher to warrant a change in your prescription.  You should discuss the risks and decide at that point whether to continue on with the plaquenil at the current dosage.  Plaquenil is very helpful when trying to stabilize this disease.  I hope this helps.

Comment by Celia on December 20, 2013 at 11:50am

What does liver level mean ?  How does your GP know it is due to plaquenil and not something else ?  What did she suggest ? One tab a day ?  I take only one tablet a day and I don't think it is making any difference to my hairloss, certainly not slowing down.  Kath - my Christmas present arrived today too -  something to enjoy later.

Comment by Pam on December 19, 2013 at 4:33pm

Yes, my present turned out to be a saliva sampling test! It does seem a bad time to put things in the post, with Christmas coming up next week!

Comment by Kath UK on December 19, 2013 at 4:25pm

Just received my DNA sampling kit from Dr Tziotzios.  I thought it was an unexpected Christmas present until I opened it!   I'll send it away tomorrow and hope it doesn't get delayed because of the holiday coming up.  

Comment by Brenda, IL US on December 18, 2013 at 2:40pm

I dont think zyrtec causes any liver problems.  My 9 year old granddaughter was prescribed it.  My doctor prescribed it and he knows im on plaquenil.

Comment by Celia on December 18, 2013 at 1:43pm

I can't find anything referring to liver damage as a side effect of cetirizine - very young children are given this and also lymecycline.  I think probably any existing liver/kidney probs may be exacerbated by using these drugs.

Christmas soon ! Amazon have e mailed me to say the cetirizine is on it's way !

Comment by Annie on December 18, 2013 at 10:50am

Hi All,

Regarding antihistamines:  I have seasonal allergies and have taken a generic version of Claritin year-round for several years. I wondered if it might interfere with the plaquenil, so I stopped taking it mid August when my seasonal allergies lessened.  I experienced my worst flareup ever in early September.  I'm wondering if antihistamines in general may lessen the severity of ffa.  Has anyone's doctor said if it's okay to take Zyrtec & Plaquenil together since both list liver damage as a side effect?   

Comment by Debs on December 18, 2013 at 4:08am

Sam that is a very interesting idea about mercury.  I had my teeth filled at a young age (5 years) because I was prescribed tetracycline antiboitics to trea ifant peunomia this damages childrens growing teeth (not us now as adults), so I have been exposed to mercuy in fillings and I do eat lots of fish.  I wish the derms would give us all blood tests to see what our bodies are doing and test us for everything possible and see what we have in common and how we differ from the general population.

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