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Comment by Celia on December 17, 2013 at 1:39pm

I saw cetirizine in the chemist at around £7 for a month's supply.  It's available on Amazon for just over £1.  I am going to try this even if it means dropping the anti-biotic I am taking. 

Comment by Celia on December 12, 2013 at 5:28pm

I posted on Dec 5th that my GP categorically said that liver and kidney function tests are unnecessary with regard to using Plaquenil but that vision monitoring IS.  I was told by the secretary to my dermatologist that the results of blood tests done automatically go to my GP.  I asked the GP to check and there were no results.  I have requested copies of the test results from the derm as I would like to see for myself how the process works.  My GP had liver and kidney function tests done for me anyway and the results were fine, but I have asked for a printout of these.  I guess I just feel more confident if I know what is going on.

Comment by Annie on December 12, 2013 at 5:11pm

My doctor also ordered blood work me after being on Plaquenil for one month, then again at three months.  I've been taking it for five months, and my blood work has been normal so far. 

Comment by Polly UK on December 12, 2013 at 5:10pm

Thanks Carol for the information. My derm didn't say anything about monitoring so I'm pleased the GP surgery is on the ball. I hope all is ok as Hydroxy seems to be helping.

Comment by Polly UK on December 12, 2013 at 1:22pm

I put in my usual monthly repeat prescription request last week and I received a phone call from a GP at the surgery on Monday to say that as I'd been on Hydroxychloroquine for 3 months I needed blood tests for full blood count and liver function before any more could be prescribed. I had the test on Tuesday and still waiting to hear the results and for all my pills to be released including heart and BP ones! Has anyone else experience of this with Hydroxy? I haven't started to take the Tetracycline drug I was prescribed last week and I'm pleased now that I waited.
I have however been taking one 10mg Cetirizine tablet each night and my inflammation is much better and I'm sleeping well :)

Comment by Annie on December 12, 2013 at 10:46am

Hi All, Just a note for those (including myself) thinking about using Zyrtec.  The side effects listed include a small chance of liver damage.  I'm definitely going to ask my derm at my 3 month appointment in January since I'm currently taking Plaquenil, which can also cause liver damage.

Debs, thanks for your information regarding the Dermaroller.  You are such a blessing!  It might be something for me to consider in the future.  I can tell that my scalp is very slowly getting better.  I noticed this morning that it no longer hurts when I put my sunglasses on - a small thing, but a blessing nonetheless.

Comment by Debs on December 11, 2013 at 2:26pm

Annie, 'yes' I use it on the first 2 inches of my hairline, so basically the next bit of my hair that is going to disappear!!!! I don't get any pain from my FFA so it is OK for me to do but I can appreciate for those ladies that have painful scalps the dermrollers would be a problem.  I only use it 2/3 times a week as you are supposed to let your scalp heal in between rolling (or needling as I like to call it).  This is just one of many methods we are using to try and control our FFA, if you are unable to use it Annie please don't worry, it is just one of several options that I and other ladies are pursuing.  

Comment by Annie on December 11, 2013 at 12:51pm

Hi All,  Just wondering how those using the Dermaroller are getting along.  Are you using it on the areas where the ffa is active?  I think those areas would be too painful for me to tolerate it at present.

Also, for those taking Zyrtec:  How much are you taking each day, and how are you tolerating it?  Are you taking it along with the oral meds prescribed by the doctor?

Thanks in advance for sharing.  I so appreciate everyone who shares their experiences.

Comment by Brenda, IL US on December 10, 2013 at 5:18pm

I'm awaiting word from Dr. Mann.  Just mailed the survey form to her today.  I listed my meds and included zyrtec.  When i hear from her i will let you know what she says about zyrtec and if she needs more participants.  I dont know if i will be able to see her in person.  My derm is Dr. Musiek at Washington University.  The zyrtec has stopped my itching.

Comment by Annie on December 10, 2013 at 11:18am

Brenda, I live in Missouri, approximately four hours from Washington University in St Louis.  I would be willing to participate in the study if more participants are needed. 

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