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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023
Discussion Forum
Botox and FFA
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Trying a new approach with CBD oil...
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Man with FFA. New member.
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Dermatologists who specialize in alopecia?
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
Comment Wall
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Comment by April on December 8, 2013 at 3:50pm
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Pam, the study was from 2010
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Comment by Debs on December 8, 2013 at 6:09am
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Liz, check out Dr Joel Furhmans diet advice and Dr Andrew Weil. Dr Furhman is a more restrictive approach but is virtually vegan, his auto-immune protocol is on the internet. I have downloaded it but can't transfer it to this site because there is a small fee (I think it was about £7) and it is not possible to send as an attachment.
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Comment by Brenda, IL US on December 7, 2013 at 8:24pm
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I took a Zyrtec yesterday and today. Last night i noticed that my scalp wasnt itching as bad as it had been in the last two months. Today there isnt any itching and the inflammation isnt as bad. I'm keeping my fingers crossed and will keep on taking Zyrtec.
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Comment by Liz on December 7, 2013 at 6:30pm
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I am thinking of trying the Paleo diet to see if it helps with my inflammation. Before I invest in any books though I would like to ask if it is a diet which a vegetarian could follow?
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Comment by sallylwess on December 7, 2013 at 2:50pm
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I actually was diagnosed with FFA by a biopsy in April of 2013. That month I also quit taking the heart medication. (My doctor gave me permission, but not her blessing.) I am doing better with the arrhythmia also.
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I am finding the discussion on allergies quite interesting. I am making so many links to my own history. I can't take Zyrtec, but do take Allegra. I am going to begin taking allergy shots soon. My allergies and hair loss went into high drive when we moved a year ago. We moved to an area where I am surrounded by things I am allergic to. I can't take benadryl or prednisone. I have heart arrhythmia which is aggravated by many allergy medications.
When I started Flecainide for the arrhythmia, I broke out in rashes, saw great hair loss, had nausea, and even began experiencing attacks of pancreatic pain. When I was told I had chronic pancreatitis, and I was having acute stomach pain, and esophageal problems, and my hair changed color from silver gray to nearly black, I quit the Flecianide. My rashes, pancreatic pain, nausea, and my esophageal problems went away. I am not currently experiencing much hair loss, and my hair is becoming silver again.
Also, my levels of inflammation are down in blood work.
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Comment by PamW San Diego, CA, USA on December 7, 2013 at 1:51pm
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A few months ago, I experienced two separate bouts of hives. Both times my dermatologist said to take one Zyrtec a day and Benadryl at night for the itching and discomfort. Last weekend, I was having problems with burning and itching scalp. I took a Benadryl at night and it knocked down the inflammation considerably, to the point where I had one of the most comfortable weeks ever. I think histamine is made in our adrenal glands, which also control other hormones. Maybe there is some connection. April, what year was the study you cited published?
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Cetirizine sounds like another tool we can use to treat our FFA... Any ladies seeing their derms soon can you ask please about this ?
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Comment by Polly UK on December 6, 2013 at 1:11pm
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Thank you April for the info about Cetirizine. I have 10mg tablets which I take for allergic reactions eg. Stings, mosquito bites, flu jabs etc and I have taken one when my scalp is inflamed and it definitely helps. 30mg seems quite a high dose dose and I would probably spend all day asleep as although it says it's non-drowsy, it makes me slightly drowsy. I think I will start taking one tablet every day in the evening and see what happens. Thank you x
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I didn't realize Zyrtec was cetirizine! Maddy, I have intense itching on my scalp, torso, and legs but no rash. I also have sensitive skin and get hives very easily. I have terrible weird reactions to tons of foods, medications and supplements. I can go on with my long and pathetic list of symptoms...Anyhow, hoping to try to get to the bottom of this: )
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