Comment

Comment by Caro UK on November 22, 2013 at 5:30pm

Thanks Pam. I'm feeling better about myself now.

Dr Tziotzios is phoning me on Monday. Wondering what questions he willl ask? I'd like to be prepared in advance of his call. Can anyone help with this? Thanks!

Comment by Alice on November 22, 2013 at 4:25pm

I have also had a lot of trouble with topical meds causing scalp soreness. I'm getting ready to try another one and hope I can tolerate it. I don't understand how something that is supposed to help inflammation can make it seem much worse.

Comment by Pam on November 22, 2013 at 9:44am

Caro I am so pleased to hear your story about finding a good wig! I am at a similar stage to you, and need to hear some success stories!

Comment by Annie on November 21, 2013 at 5:04pm

Mandy, your story sounds like mine.  I had very little pain until after I started using topical steroids.  I'm currently on my third one.   I don't know if the ffa is causing the pain or the steroids.  The redness & inflammation is much better, but my scalp is so tender that I can barely stand to style it or go outside on a windy day.   I'm hesitant to stop using my anything on my scalp because I had a flareup when I took a break from topicals for a month.  I've also been taking Plaquenil for almost five months. 

Comment by Caro UK on November 21, 2013 at 5:03pm

Thanks Annie, Kath and Debs. It's recently become impossible to disguise my hair loss by hair styling as I had been able to do. I am on medication but of course, as for all of us, have no way of knowing if it has slowed down the progress of this disease. All I can do is hope!  I'm taking Planquenil 200mgs daily and using Dermovate scalp lotion. 

Debs, thank you for attending the CARF meting and for posting all the info on the forum. I've been in touch with Dr Tziotizios to sign up for his DNA research and he's phoning me on Monday. Also will check out the needle rollers -  I've noticed that since I had my eyebrows tattooed I have had some regrowth of my eyebrow hair which has to be good!

Mandy, I'm sorry you've had no benefit from Dermovate lotion. I've been using Dermovate on alternate days for about 10 months but have had no adverse reaction - on the contrary it has helped the inflammation of my scalp. Wondering what others using it have experienced? It is a very strong steroid and I was worried about using it but my derm reassured me that it was the best course of action to reduce the follicular inflammation.

Comment by Mandy on November 21, 2013 at 3:24pm

Evening everyone,
First went to my GP in May had noticed some hair loss and a very thin red line at the front of my head... Not itching or redness anywhere else!
GP started me on Betnovate twice a day and doxy once a day and my head seemed to settle down. Went to so consultant in July who took me off Doxy a change me to Dermovate... This lead to a very sore head in days so after a call to the consultant was put back on Betnovate!
Since that I have had a constant sore head that is very red most of the time... Have been back to my GP who has put me back on Doxy... But still no change... Red and sore! But on the up side no more hair loss :0)
So I'm back at the consultant on Monday and I'm very confused... Before using any treatment my head was fine and at the moment I have stopped using everything as a feel my head needs a rest.
Unsure if the drugs have stopped my hair at the moment or not... Really struggling to decide medication or natural?
Sorry to moan... Really am a cup half full person and amazed with all the new info from Deb... Going to try the roller x

Comment by Kath UK on November 21, 2013 at 2:55pm

Caro - I'm delighted you're so pleased with your Ellen Wille wig.  I have an Ellen Wille hair piece in 'Dark Sand' which matches my hair really well and I've had lots of compliments.  Enjoy your new look!

.

 

Comment by Debs on November 21, 2013 at 1:13pm

Caroline I am so pleased you are sorted now with new hair that feels like the old you... your colleagues clearly agree and think you look great.  Now you have new hair this can take some of the pressure of you when you are out and about. 

Comment by Annie on November 21, 2013 at 12:19pm

Rita,  I had a tender, itchy scalp for about the first 3 weeks after I started using Rogaine.  My hairdresser said this was normal as your body gets adjusted.  I have a very sensitive scalp, but it wasn't anything too bothersome.  I also find that I'm a little furrier in places I don't use Rogaine, like my neck & around next to my face.  The good news is that my eyelashes have gotten thicker & longer.  Hopefully it draws attention from my thinning hairline.

 

Caro UK, I'm glad your new wig is such a success.  Thanks for sharing with us.  I'm a very private person, and my hope is that if/when the time comes for me to transition into a wig everyone will think it's my own hair, only better.   

Comment by Rita - Canada on November 21, 2013 at 11:32am

Annie, Thanks a bunch for your Rogaine routine info.  I was at Costco-U.S. yesterday and saw the Rogaine 4 mths $49. and the no name 6 mths for $48.  I probably would stick with the Rogaine brand if I decide to try it.  I assume you had no side effects then, correct?

• ‹ Previous
• 1
• …
• 341
• 342
• 343
• 344
• 345
• …
• 506
• Next ›
• Page