Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Jean on November 17, 2013 at 4:31pm

Please can you let me know where you purchased the Regaine Terry?  I haven't tried this yet but my existing hair is significantly thinner than it used to be so it's worth a shot.

Many thanks

Comment by Maddy, California, U.S. on November 17, 2013 at 3:55pm

That is a great question, Jules! It would be very interesting to know if baldness is increasing in men! I have long wondered about cosmetics, creams, lotions, sunscreens (definitely something that generations before us have not used on their faces and bodies like we do, since they didn't really know that much about sun damage), and pesticides too! All things that are part of our environment these days. I agree, organic is definitely the way to go whenever possible. 

Comment by Jules UK on November 17, 2013 at 12:51pm
Debs, where did you order your roller from? There's such a range of prices. Talking to my husband about your post, he wondered whether the incidence of baldness in men had increased as FFA seems to have in women? Is it something in the general environment such as pesticides? Or something in cosmetics to affect women? If only we could get to the core of the problem! Anyway, I'm firmly organic in as much as possible, food and face creams etc. riverford organic veg boxes are excellent, and Neal's Yard remedies an indulgent treat that I can now justify. X
Comment by Maddy, California, U.S. on November 17, 2013 at 12:34pm

Wow! Thank you Debs so much for sharing all of that information! So helpful and it is nice to know that there is research going on and that maybe there is some hope. I would definitely like to be a part of the research. I will email Dr. Tziotzios! Thank you again and please keep us posted on the microneedle rollers.

Comment by Betty on November 17, 2013 at 11:12am
Thanks Debs. You are right. I guess I was just having a freak out moment and needed to hear the voice of reason lol I am also a little daunted at the thought of finding a GOOD doc as I haven't had the best luck with doctors in my lifetime. I will check out CARF.
Comment by Rita - Canada on November 17, 2013 at 8:38am
I have been holding off on trying Rogaine and I presume all that are using it are doing so with the 5 percent foam. My derm suggested I try it. Has anyone in the U.S found it online at a more reasonable price & if so, could you share the website, please & thanks.
Comment by Debs on November 17, 2013 at 8:08am

I agree with you Jean, I thought of your post about your Chinese medical practitioner yesterday when the derms talked about the microneedle rollers.  I have just ordered one online for £25.  Am going to also buy some regaine now and use together. 

Comment by Jean on November 17, 2013 at 7:07am

....there you go - I knew there was something in my Chinese head whacking!!!  Lets hope that the supplements he's given me for my gut are also productive.  Watch this space (although he said that it would be a long job).

Jean

Comment by Debs on November 17, 2013 at 3:05am

MICRONEEDLE ROLLERS - only heard about them yesterday at CARF meeting.  have looked online and increase effectivness of minoxidil (regaine/rogaine) by 5 times efficiacy and if used on its own has proven to stimulate collegen production and hair growth.  Suitable to use on own or with any topical applications.  Very cheap online to purchase.

Comment by Debs on November 17, 2013 at 2:25am

Betty I suggest you contact CARF they are based in the USA and can direct you to a derm with a special interest in FFA.  Yes, you should do something preventative now before the inflammation continues - the sooner the better.  When the condition burns out the doctors don't know if it is the meds or if it would have stopped anyway, however since scarring alopcia is permenant hair loss I think most of us want to try and take some action whether that is diet, drugs, supplements etc..  Please do contact the doctor I have put in my post doing research, I don't see why he would only want DNA from people in the UK.

 

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