Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: on Monday

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron on Monday. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Debs on August 24, 2013 at 11:47pm
Hi silversurfer the brand name is HEALTHWIZE it is made in the USA and the supplement is just called herbal HRT.

Terry fantastic idea about rogaine. I know that minoxidil is the only drug that is proven to prevent hair loss. This company has plenty of money to use in research for us too.
Comment by Liz on August 24, 2013 at 6:48am

Sounds an excellent idea Terry :o) x

Comment by Celia on August 24, 2013 at 6:34am

Well done Terry ! I am thinking about this ! X

Comment by silversurfer on August 24, 2013 at 2:06am

What is it called Debs

Comment by Debs on August 23, 2013 at 5:45pm
Ladies i know a few people that use herbal HRT to help with hot flushes. It is a herbal alternative to the regular HRT that doctors prescribe. A company called healthwize make it. It is supposed to really work.
Comment by Brenda, IL US on August 23, 2013 at 5:07pm

Thanks Debs! My hairstylist cut my hair shorter yesterday because of the hair loss. I think the scarves would work now. I'll give those a try first and maybe try a wig this winter. Carol I'm so glad your husband didn't even notice you had a wig on! I sweat horribly when i try to put makeup on. Doesn't matter what time it is. I wonder if this has anything to do with taking resveratrol. I'm trying to take so many new supplements now.

Comment by Debs on August 23, 2013 at 6:42am

Brenda, I can see that the humidity where you live would make a wig very hot indeed, luckily in the UK our colder climate is a real Godsend if you wear 'hair'. I wear a silk scarf, a long thin shape wrapped round my head basically in the same place that a headband would go and tie it in a double knot in the front and then just tuck the 2 end in. In silk material it looks expensive and a fashion choice. I have several nice silk scarves I have bought to match different dresses/tops. If I use larger earrings than I normally wear and no other jewellery it looks good. The silk scarves cost about £15 in the UK at Accessorize shops, I expect you can get something similar in the US. Good luck with finding a solution. XX

Comment by silversurfer on August 23, 2013 at 1:44am

that sounds just like me maddy. Sometimes I look as if I have run a marathon .my hair dripping wet. I will have to try taking turmeric to see if it makes a difference

Comment by Maddy, California, U.S. on August 22, 2013 at 9:56pm

I also get the head sweats really bad! It's always right around my hairline. Sometimes it actually drips. I get hot flashes too, but none of my friends ever get the hairline sweating. It must be connected to FFA. I am taking Turmeric too and have possibly also noticed a bit of a decrease in the hair sweats, but I can't be sure just yet.

Comment by Brenda, IL US on August 22, 2013 at 9:28pm

My head and face sweat profusely too. But i also have hot flashes. I went through menopause about twenty years ago due to surgery. I blame the flashes on lupus. The head and face sweats on menopause. Don't know what the causes are. But definitely uncomfortable and embarrassing.

 

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