Comment

Comment by illustr8r on February 20, 2019 at 1:43am

@HBW and @CurlyK That’s wonderful that you two were able to meet each other! Yay! 

Regarding eyebrows...I use Latisse for my eyelashes and I swipe the brush across my brows too. I have new hairs coming in but I know I won’t recover them all. I have two large spots in my brows that are obviously scarred and ruined forever. The new hairs that come in at least add to the illusion of brows with the old microblading that needs refreshed...I’m drawing too much now to look normal.

Im trying to stretch my Latisse prescription so I bolster my lashes and eyebrows with Castor oil. It works well.

Comment by Dianna on February 19, 2019 at 6:39pm

My eyebrows have responded very well to Castor oil. I just put it on every night and rub it in. So far they are coming back to an acceptable level.

Comment by Plf on February 19, 2019 at 6:35pm

hi afraid, so far my eyebrows are sparse, but I think are responding to olive oil, enough there still to use eye brow powder ( but still sparse), lost hair on arms, and about 3 cm off the front of my hair line..so far quite fortunate by the sounds of it.  About 5 years ago I had bilateral frozen shoulders for about 18 months which is ? Auto immune.

Comment by Afraid on February 19, 2019 at 5:33pm

Thanks K15 & HBW 

Some great info & advice x 

HBW how brilliant to meet up with CurlyK!  Have a good flight back to France zzzz 

Comment by Halfbakedwho on February 19, 2019 at 4:43pm

Hi everyone, on my way home and stuck in the Atlanta airport, bad weather today.

I was able to see CurlyK in Sarasota Florida! Thank you so much for driving to see me! We had a lovely lunch. Meet up if you can, kiddos, it’s worth it.

I still have my eyebrows, they’re thinner but they’re there. I don’t have bumps on my face as far as I can tell. I also have no other autoimmune issues. I eat what I want but try to be healthy. I am trying to give up diet soda now though - nasty stuff. 

So I am in for the long inevitable progression of my hair loss I suppose. Right now, so tired. 

Comment by Kandy15 on February 19, 2019 at 12:22pm

Afraid, I have been fortunate enough to have been able to keep my eyebrows for the past 3 years but am just now noticing that the left one is disappearing on the outer third.  I do not have any other autoimmune diseases that I know about. My sister and I were talking just yesterday about that.  She says if you have one then another is sure to follow.  She has Sjogren's disease which has a lot of issues that go along with it and also psoriasis. 

Thanks to the suggestions from the wonderful ladies on this site I have downloaded the EWG app on my phone.  I have looked up a lot of products that are chemical free.  I found an online store called Be Green.  I now am using their face wash, night cream, day cream, lotions and deodorants.  I am very happy with them.  I have not heard of Drunk Elephant products but if you try them, please let us know what you think.

Comment by Afraid on February 19, 2019 at 11:58am

Quick question lovely ladies,  I’m just wondering if anyone has a diagnosis of FFA/LPP and managed not to have any of the other related troublesome issues such as eyebrow loss , facial skin issues or any other autoimmune conditions?  I think I could just about cope... (possibly)...losing my hair if everything else was going to be ok.  Amazing how you begin to bargain.... ?!? 

Also has anyone tried Drunk Elephant products?  I’ve read they are fragrance free etc etc. 

Many thanks x 

Comment by Kandy15 on February 19, 2019 at 11:29am

Minter,  Thanks for the advice on the microblading.  I am so thankful for this site because we are all here to guide and support one another.  I had lunch with my sister yesterday and she told me that her daughter had the microblading done a while ago and that the technician actually came to her house from another state to do it.  She said it was a big surgical event with the tools and the gloves and gowns, etc.  I will be having a conversation with my niece to see how it went for her.  My sister said she thought about having it done but is too scared.  Her brows are really thin but all there.  It's funny how I am always checking out everyone's hair and brows now where ever I go.  I wonder how many women with hair loss problems are checking my hair and brows out too?  

Comment by Minter on February 19, 2019 at 8:22am

Kandy15, I did the pencil/powder thing for my brows for what seems like years and was constantly checking on them and god forbid if I was swimming or sweating- oh no where did my brows go!! 

I paid about $300 in 2017 that was for the consultation, the first application & followup touchups.  Sadly, my skin has become so "tough" because of FFA that she was going through blades like crazy trying to micro blade and it all the fine lines ended up blurred together once it healed so she said that's it- next time around she will do a powder fill as  microblading and my skin do not mix. Yet again, thanks FFA.  Which is fine for me- but make sure wherever you go that they are aware of your FFA.  Also the brows fade faster then with "regular skin" Yay for FFA ugh. 

I still use powder on my brows, only because otherwise I have a bit of a shine on my skin, so the powder dulls them - but a bit of powder in the morning is no great hardship!

The healing is, wow not fun!  I scheduled it so I wasn't doing Anything for those first 5ish days as yes, there is scabbing and after the first day or two the color turns very dark- then it is like omg what did I do! But be patient as it will lighten up to where it is supposed to be and then around the 5th day the worst of the scabbing is done (if I remember correctly)  I must've googled for days about microblading and healing so I pretty much knew what to expect, but still it is a bit jarring to look in the mirror the first few days.  No swimming, no sweating, no getting the face wet while healing. But, again- it was so, so, so worth it!  

Definitely find a technician that is experienced and knows what they are doing especially with this FFA, go on several consultations if you have to to find one that you trust. I love my technician as she is passionate about what she does and it is not a sideline or anything. 

Good luck and it will be one of the best things you can do for yourself! 

Comment by KarenD on February 18, 2019 at 5:03pm

Kandy15 I love the way your mom thinks!  She sounds adorable and supportive!  I am planning on some bangs and probably some glasses that will help me hide my brows.  Along with the loss of brows I seem to have some atrophy where the brows were on the sides.  My derm said that that can happen with FFA, so not sure that tattooing brows in will work for me.  There seems to always be "that one more thing" that comes along with the diagnosis of FFA that sneaks in to surprise us.

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