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Comment by ElleMN, USA on February 11, 2013 at 3:01pm

Simone, my dr recommended head and shoulders classic clean, DHS shampoo with zinc (which I have to special order from the pharmacy) but those products are to help with itching. I think the gentler the shampoo the better.

Does anyone have a great, natural way to soothe itching; did someone mention tea tree oil? The itching is new to me.

Also, does anyone else experience small round, red, bare patches on top of the head, well away from the hairline? I go to my dr tomorrow and will ask but wondered if others have had this.

Comment by Simone NJ USA on February 11, 2013 at 2:35pm

Hi Debs:

You look great in the wig. Thank for the info and will check it out. Since I'm new to FFA. What's the best way to care for the existing hair. I have been using an organic biotin shampoo and conditioner. Other than that..is there something I should be doing/using? Also, can one color the hair once they have FFA? If you or anyone have any advice for me on this that would be great...thanks...

Comment by Debs on February 11, 2013 at 12:30pm

Liz - I have the same look too. I looks like this and then it falls out. No itching or visible inflammation.
Simone, I have been getting my wig info from a site in the USA, WWW.WIGSUPPORT.COM the ladies on there are fantastic. They post photos of themselves in different wigs, tell you the name, brand, where they got them, how to shampoo, cut, style them... literally any thing you can think of they will have the answer. It also has helped to normalise wearing wigs for me by seeing how beautiful those ladies are.
In the USA you have great wig brands and online suppliers. The wig I wear to work is a Jon Reanu wig called Ignite (the wig in my photo is a Julia wig also by Jon Reanu) have a look at www.wigs.com that is a good website with lots of wigs, I would also then just input the name and brand of a wig you like into the internet search engine and see if any other site has it cheaper.

I am sure the hormones in food is detrimental to our health and it does make sense that it could be related to our FFA since this condition affects women close to menopause or post-menopause. I hope that now Celia has given us so much help and info to get to Dr Harries there will be enough of us to really get some more research on FFA.

Comment by Simone NJ USA on February 11, 2013 at 12:25pm

Thanks for the info, Celia!

Comment by Simone NJ USA on February 11, 2013 at 8:54am

Hi Celia:
Hope you had a great weekend! Do you find that the ratio will turn grey aver time. That's my only concern with tattooing versus using pencil..any thoughts will help..tks

Comment by Alice on February 11, 2013 at 8:33am

Hi, Celia. Elidel hasn't helped my hairline, either, but has helped my eyebrows. I still use pencil to fill them in but can pass for normal w/out it.

Comment by Alice on February 11, 2013 at 8:31am

Comment by Alice on February 11, 2013 at 8:14am

I've been lurking for a while and finally decided to post a comment for the group. I am 61 years old, live in the US and have had FFA for about 1 1/2 yrs.

About 6 mos ago, I talked to my dermatologist about a woman in Greece w/ FFA who was successfully treated w/ Avodart (a prostate med) and Elidel (a cream for eczema). See http://www.dermattikon.gr/magazines/_1/KATOULIS%20EN.pdf.

She gave me some samples of Elidel and it has helped my eyebrows. One was noticeably thinner than the other and now they are nearly the same. I still have some itching and soreness, though.

The next time I went in, my doc had done some research and offered me a prescription for Avodart, but I wasn't ready to go that route yet. She does have one patient taking it, so I plan to ask about that when I go back next month.

I have quite a bit of itching and soreness all over the top of my head but find that tea tree oil helps. It seemed worse when I was using Nizoral shampoo and topical Clobetasol. I think they must have been too irritating.

Has anyone else tried Elidel for their eyebrows or tea tree oil for their scalp?

Alice

Comment by Jules UK on February 10, 2013 at 12:54pm

My hairline is very like this too but not so advanced yet. The inflammation bumps are the same. Although I don't have the bumps at the temples but the hair is still receding from here too.
I have just fallen off the "gluten wagon" - Eve's orchard pudding! Slapped wrist and back on it.
Liz, if you use the Travelodge, book ahead for the best price. The car park also cost £7 for overnight. I really did need a satnav though. X

Comment by Liz on February 10, 2013 at 7:26am

Thanks Jules. I shall stay at the Travelodge :o). I've tried to take a picture of my forehead to show the bumps but it doesnt come out very well. I have no redness or itching and never had had. The bottom of the picture is where my hairline once was.
xx

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