Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 600
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Jules UK on January 10, 2013 at 2:41pm

Hi, I too received one of Dr Harries' questionnaires today. The last question made me go cold - do you regularly use a computer screen? I've been an ICT trainer/ teacher since 1982! Of course, I know at this stage it means nothing but .......
Celia - thanks for the info re eyebrow tattoos. I'll look into it, but Surrey is a long way for me.
Hairloss is getting quite bad at the moment. Whether this is linked to using Protopic and Doxy... i don't know. Has anyone noticed improvement with any medication?

Comment by Liz on January 10, 2013 at 10:53am

Will you ask if we can all access and fill it in online or shall I phone and ask for one individually? x

Comment by Liz on January 10, 2013 at 9:37am

Hi Celia. I shall write or phone and ask to be included in the research x

Comment by PamW San Diego, CA, USA on January 9, 2013 at 10:43pm
Judy, your comment box was empty. How did things go for you at the doctor?
Comment by Judy on January 9, 2013 at 9:53pm

Comment by Judy on January 6, 2013 at 9:31pm

Pam, thanks! Actually I think my hair loss has slowed also and I think I have several new hairs sprouting on eyebrows - possible?? Maybe it is this COLD weather? I will let you know if anything interesting at apt tomorrow.

Comment by PamW San Diego, CA, USA on January 3, 2013 at 10:37am
Hi, Judy! Good luck at the derm next week. You may want to ask about Zyrtec for itching. I too have the red rash in between my eyebrows and I assumed it was because the hair follicles were inflammed. I have been on Actos for one month. I still have itchy days, but nothing like it was before. I also think my hair loss has slowed down. days where hair lost is normal and just a few days of crazy hair loss.
Comment by Judy on January 3, 2013 at 1:11am

Hi everyone and Happy New Year!! I have been out of touch for several weeks and enjoyed reading all the interesting posts. I have my 2nd appointment with dermatologist Monday and have so many questions this time.
I, too, was initially scared to take the Plaque(Hydroxycloriquine) but learned much more, from this site and from doctors.. I had an appointment with eye doctor this week and he said that eye problems rarely are seen until very long use. Hope we all won't be on it forever!!! He gave me a chart/grid that I am supposed to look at every day to make sure the lines are straight, not wavy.
One of the questions I have for the dermatologist is about the
autoimmune disease part - what do they know. I have a feeling that
stress is a big factor, at least for me. Anyone else?
Also curious about the red spot/rash between the eyebrows. I know a few of you also have that.

Celia, I feel for you with the septic. I have one, a very old one, also and it is a huge fear that the darn thing will flood.
Good luck.
Pam and Lacy - I am in San Diego for only a week. But I plan to be back in mid February - look forward to meeting w/you.

Comment by Judy on January 3, 2013 at 12:50am

Comment by PamW San Diego, CA, USA on January 2, 2013 at 1:55pm
Hi, PJ. You need to be careful about selecting a permanent makeup artist. I would ask your dermatologist for a recommendation. They all know the best people to use. If not your derm, then ask friends, but you definitely want to go with a personal recommendation.
 

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