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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Hallo everyone. Sorry I havent been on much. I hope that everyone had a good Christmas. I popped to my Gp this morning who says that she'll refer me to Dr Harries so hurrah for that :o)I'm now thinking of having a fringe which I havent had for about 25 years.Hopefully I have enough hair to make one! xx
Actos is actually a diabetic drug that changes the way your body metabolizes carbs. The research is showing that toxic lipids are attacking the sebaceous glands which are located near our hair follicles. The toxic lipids are a byproduct of the way we metabolize. There is a gene called PPAR(g) which is turned off in LPP and FFA patients. The Actos turns the gene back on. Actos is the brand name but the generic name is something like Piglatezone. Actos has been known to cause bladder cancer and heart problems in patients who have taken it for a long time and at high dosages, so doctors are reluctant to prescribe it. My doctors gave me the ok because I would take it for a few months only and at a very low dose. I have been reluctant to comment because I don't want to give people false hope. However, I have noticed a difference in the amount of hair that I have shed. Also my scalp is less bothered. My bad days are when I eat gluten. I was on Doxy for three to 4 months and went off because the specialist I saw didn't think it was going to make a difference. It does have anti-inflammatory properties so derms prescribe it because they want to keep the inflammation down. inflammation is what causes our hair follicle to let go of the hair and eventually scar over to protect itself. Actos has been the only drug that has been shown to stop the hair loss. There is a doctor, Dr. Vera Price, out of the University of San Francisco who has done a lot of research for CARF and they found out about Actos. It is not the "standard" in treatment because there hasn't been enough research.
Another gal on another board says it helped her and she started noticing the difference after being on the drug for about 4 weeks. I am on for a little over 20 days. She says she sees regrowth -- I always thought regrowth was impossible. I will be happy if things don't get worse.
Chris, I think it is. I don't see hair all over the place anymore, the redness is down and itching and burning only occurs if I don't eat right. I am taking 15 mg per day. Let me know what you decide!
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