Comment

Comment by Liz on December 2, 2012 at 10:02am

Hi Sandy. I have a good knitting pattern for ones that are wide at the front and thin at the back. If you google etsy you can buy either the patterns or finished items. I have also made some material ones which work well :o)
Hi Celia. Thanks for the feedback on your appointment with Dr Harries. It seems like he is doing all he can and he certainly sounds more thorough than my doctor. I guess that as more and more people are diagnosed with it it will become more known and researched. I would like to get it talked about on tv and in magazines but Im not sure how. I contacted embaressing bodies but the answerphone told me that they dont need anyone else until next year. Do you or anyone else have any ideas?
xx

Comment by Debs on December 2, 2012 at 6:32am

Celia, thanks so much for passing on this info. At least we all know what the options are for us and we are as best informed as the dermatologists themselves. I am very pleased for you that Dr Harries gave you some treatment on the day. Both you and Pam have now mentioned the anti-malarial meds as a treatment. I will look into that too. Thanks again, enjoy your weekend. XX

Comment by Jules UK on December 2, 2012 at 4:25am

Good morning! I wondered whether anyone has tried protopic cream. Since Dermovate isn't helping any more, I've been given this to try. I'm. Bit worried that there's a warning with it about skin cancer, which I've had twice, and that you can't drink alcohol! No wine over Christmas....., I just can't remember if anyone's mentioned it before. I agree that it's puzzling that there's no news from celia, but I'm sure she'll be in touch when she's ready to talk. Hope she's ok. X

Comment by Anabela on December 1, 2012 at 5:41pm

Good evening to all.
One of the best Portuguese dermatologist that I consulted in Oporto, told me that the implant is not possible, since the skin is healed, therefore, has no pores to breathe. He gave me an example, "it's like trying to plant trees on cement." We can only hope that the hair stop falling.
So, let's enjoy the weekend and relax our mind and be happy!!!

Comment by MairiM on December 1, 2012 at 4:42pm

Pam - I haven't had any hair loss with the Minoxidyl. I've been making partings all over the top of my head and applying it. My thinking was that I need this hair to be in good condition to cover up the gapsin front! This may be totally wrong, but there's no clear guidance from the medics. The minoxidyl was prescribed by my consultant - we are lucky that we get prescriptions free in Scotland.

Comment by Debs on December 1, 2012 at 2:45pm

Pam, I was thinking the same as you... Celia may just be having some time to relax after her consultation on Thursday, I certainly hope that she did not have any upsetting prognosis. xx

Comment by PamW San Diego, CA, USA on December 1, 2012 at 11:25am

Yes, I am concerned that we have not heard from Celia. I hope she is ok.

Comment by Debs on December 1, 2012 at 1:44am

Hello Pam, thanks very much for posting this info for us all to share. It will be interesting to compare the advice Celia is given by Dr Harries. I hope you are able to relax a bit now and enjoy your weekend. xx

Comment by PamW San Diego, CA, USA on November 30, 2012 at 11:08pm

Judy, her name is Dr. Caroline Goh. She has alopecia.Check out the UCLA dermatology website.

Comment by PamW San Diego, CA, USA on November 30, 2012 at 11:00pm

it was a woman doctor but i dont remember her name. I will google it and see if I can come up with it for you. The one to really see is Dr. Vera Price in San Francisco. She has done the most research.

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