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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Thought I'd update my photo as the last one was taken 2 years ago,this was taken a month or so ago. Its only taken me 30 minutes!!!Jules as I have said before I noticed my hair was receeding in January and now mine has probably gone back 1 inch at the front but the side bits ( the bits where men receed each side of the fringe)has gone back alot further probably 2.5 inches. My fringe still covers it as long as there is no breeze as you can see by my new photo!
My hair has receded about 1 and a half inches since Christmas and another 1 and a half inches behind that has thinned. Also I have lost a lot from my temples and half of one eyebrow.
Mairi, I have lost most of my arm and leg hair, I haven't needed to wax my legs since last xmas( FFA has some benifits!)
Liz you can pull the hair out easily as the hair follicle is damaged, I can do the same to the odd eye brow hair that I've got left. They grow in a weird way, different directions and some not even on my brow!
Debs I've been on anti malarial tablets (Quinoric 'hydroxychloroquine Sulphate')since May. I've had no problems with taking it and I'm on it until Febuary when I next see the derm!
Celia, I have asked questions on a couple of other alopecia websites about plaquenil (anti-malarial drug). 2 ladies in the USA have said that they used anti-malarials and it did help the hairloss. Can you please run this past Dr Harries, also 1 lady said she used Vitamin H - Biotin - this was presecribed by her derm. Ta v much.
Hi Ladies, I have lost the hair on my arms and legs, it happened very quickly and to be honest I didn't really notice it until I saw the loss of head hair last December. Celia, the tattoo lady knows what you want.. a natural looking eyebrow, she is used to treating people with alopecia. You have a consultation when the do the treatment and they discuss at length the shape/colour etc you want. I bought some St Johns Wort about 10 days ago, I feel very anxious and wanted to try a natural route to help myself. I do find I wake up in the mornings and for a few seconds think I have just had a nightmare where I have imagined I am losing my hair... then reality dawns on me that it is real. I think this is the most difficult thing I have ever had to deal with in my life because it is happening in slow motion, other upsetting events have tended to be quick, like bereavements, whereas this FFA is very very drawn out. The lady I made contact with that I mentioned in my previous post (that was diagnosed in 2006) has used just about every treatment going and she unfortunately has had continued hair loss. I found a nice website yesterday in the USA, www.coveryourhead.com. I have ordered 5 nice wide headbands, I have headbands that are 3.5 inches but my front hairline had receeded pretty quicky in the last 3 months so I wanted to make sure I have even wider headbands at home to wear to the gym in case it all speeds up even more. I have a horror of being caught out and not having anything to cover my hairline with. I too am really interested to see what Dr Harries can tell the Celia, if he offers any other treatments we can all have a go at it. Have a good day ladies, I am making sure I still go to the gym to try and work off some of this angst. XXX
Can anyone else just pull thier hair out at the front? The doctor pulled a handfull out when I saw him and I didnt feel it. I guess thats how he assessed with the condition is active. I try to leave it well alone but this morning I had a little pull just to see and I can pull it out as easy as anything. Just from the front. The back and side behind my ears are stuck fast!
Jules - yes I was trying the 5:2 fasting diet. I have not done it for the last two weeks as I've had a really bad cold and haven't felt up for it. I did see it being recommended in a newspaper, with the proviso that we should eat a healthy 2000 calories on the non-fasting days. I do really like it. I do put on weight very easily and find it easier to fast two days rather than be constantly watching what I eat. Who knows if it affects the FFA? Website is playing up again - can't see any 'Reply' boxes :-(
I have virtually no hair on my arms and legs. I think this went pretty quickly - not a gradual retreat like the hair on my head. Does anyone else agree? If so, it would be interesting to know Dr Harries thoughts about this.
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