Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Debs on November 9, 2012 at 12:44pm

Hello Celia, 'bangs' are a fringe in the US. The lady I had my eyebrows tattooed last November has a beauty salon in Richmond, she did a very nice shape and I am happy with them BUT... she did a block of colour and I have since seen people with individual little lines that look remarkably like real hairs from other salons. In my local paper there have been 2 articles about a lady in Chertsey, Surrey that is supposed to be one of the best, she does the little lines so it looks like hair growing and she has worked on the Olympic Gold medal cyclist that has alopecia...

www.belindahayle.com Belinda Hayle 01932 566776/07976

I have not used Belinda yet because my brows are still dark enough from a year ago but I will go to her when I need a top up.

Comment by PamW San Diego, CA, USA on November 8, 2012 at 9:45pm
You will love it. The first few weeks you will be too dark. Give it time and you wont regret it. If I had to draw on eyebrows AND fix my hair, I would never get out of the bathroom. Good luck to you!
Comment by CJ- Christine from Ottawa Canada on November 8, 2012 at 8:51pm

I think its only on the face, BUT who knows!!! The only thing I`m learning is that not that much is certain and lots is uncertain. I`m looking into tattooing!

Comment by PamW San Diego, CA, USA on November 8, 2012 at 5:49pm

I have red spots between my eyebrows - on the bridge of my nose. CJ is it only on the face? I think I have a rash on my arms sometimes.

Comment by PamW San Diego, CA, USA on November 8, 2012 at 5:48pm

Comment by Heidi Short UK on November 8, 2012 at 3:46pm

Funny you should say that CJ, when you look at my forehead under a light it looks as if I have got a rash under my skin. I wandered if it was to do with FFA, I was going to ask my derm next visit. Did you find any thing else interesting about ffa?

Comment by CJ- Christine from Ottawa Canada on November 8, 2012 at 2:01pm

HI All,
I learned at the Skin Matters conference that FFA can cause 'bumpy skin' or bumps on the face. I have noticed that my skin along the jaw line had changed texture over the last year and I assumed it was age related but apparently it is something often seen in FFA. Its kind of crepe- like with bumps that look like very small emerging pimples that don't go on to become pimples... hard to describe really. anyone else have this?

Comment by KarenGinny - Iowa, US on November 8, 2012 at 1:33pm

I've been using Neutrogena T-gel shampoo for scalp irritation for about a year now. I've also tried Nioxin shampoo and conditioner but I use the t-gel more since it is less expensive. It seems to help control the itching and irritation pretty well. - Karen

Comment by Debs on November 8, 2012 at 2:37am

Morning Liz, now you have told me you have good results with Nizoral shampoo I will definately give it a go. Thanks, popping off to Tesco shortly to stock up.. XXX

Comment by Liz on November 7, 2012 at 4:52pm

Hi Debs. I've used Nizoral shampoo before and it's fantastic for scalp iritation. I have used it a number of times of the years and it's always worked better than any prescribed hair treatments I've had :o)

 

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