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Comment by AnnieMay on March 29, 2020 at 10:59pm

Hello all, I wanted to check in and say that I'm thinking about everyone during these very unsettling times and hope that you and your families are well. With our kids coming home from NY and the stress of all this I've definitely had more hair loss and thinning and it's a challenge but nothing like what so many are dealing with. Thinking about everyone tonight

 

Comment by CurlyK on March 18, 2020 at 10:59am

My apologies - the webinar is TOMORROW night, Thursday, March 19. 

Comment by CurlyK on March 18, 2020 at 8:10am

CARF conference has been postponed until November. However, tonight at 6pm eastern time US, Dr Maryanne Senna will do a Facebook live talk on scarring alopecia and COVID-19. Find CARF (Cicatricial Alopecia Research Foundation) on Facebook to watch. It will also be recorded. Who else will be watching with me?

Comment by Nacey on March 1, 2020 at 10:26am

hello,

i am new to this group and i am so happy that i found it, i have a lot of question and is wondering if anybody can help me out. my hair loss started at the age of 22after a huge weight loss. i have seen about 5 to 6 dermatologist because i just don't agree with what they are saying, i have had 3 biopsy and they all came out to be androgenic alopecia but i don't agree with it at all. my hair line is receeding as well as my side burns and the nape of my neck , there hasn't been a stop to my hair loss. my hair falls out everyday on top of my eyebrows thinning out, all this hair loss comes with burning sensations including the eyebrows. Everyone just thinks im crazy which drives me insane. i am now 26 years old and i feel like they dont think it is ffa because of the age. does anybody know anyone this young with ffa ? by my symptoms can anyone tell me if this sounds like ffa ? can a biopsy be wrong?

Comment by Wyobalance on February 23, 2020 at 8:07pm

I'll be  at the CARF conference in Nashville.  Can't wait!  It would be good to meet everyone.  Lots of medical info from the best in the field, plus tips & tricks for dealing with this stupid disease. 

https://interland3.donorperfect.net/weblink/weblink.aspx?name=E3430...

Comment by illustr8r on February 22, 2020 at 8:01pm

Ugh! I had 2 weeks to go till I got my brows microbladed again but I had to push the appointment back another month and a half because of travel and her availability. I just hate drawing these suckers on daily. I’ve waited too long for a refresh. The scarring in my brows are pretty rough and eyebrow pencil and powder just doesn’t want to stick. I’m just venting but FFS is FFA a frustratingly thing to deal with!!!

Comment by Bloomingdalekid on February 22, 2020 at 4:15pm

I love the way you change up your style every 6 months.... so I suspect your replace your unit every 6 months or so?  Since you tape the crown, might I be bold enough to ask if you shave the top of your head or if your FFA has gone back that far?  I have quite a bit of hair (other than my forehead) and I have gone with clips so I can remove the unit ever night.  I use tape on the front and tried ghost bond only once and had a horrible time getting out of the lace front.  Do you use tape on the unit and the ghost bond on your forehead?  Buying my human hair unit is the best thing I ever did for myself - it gave me back my self esteem.  With my choice of clips instead of bonding, I am restricted to not being able to swim with it, but that’s okay.  I know you live in Florida - how does the ghost bond hold up in the humidity?  Thanks CurlyK - you look FABULOUS !!!!!  

Comment by PamW San Diego, CA, USA on February 22, 2020 at 4:07pm

Curly K that is fabulous.  May I ask if you take it off daily?can you wear your hair back or tuck it behind your ears?  Is it hot?  Can you swim?  Where did you have it made? So excited for you!

Comment by CurlyK on February 22, 2020 at 3:56pm

New hair and a fresh cut! This is a bonded human hair piece. It sticks to my scalp with tape and some ghost bond (glue) in the front. 

Comment by Plf on February 17, 2020 at 3:15am

Hola all, still following the thread hoping for a miricle..I applaud how you all manage to support each other and often inject some well needed humour into your posts... seriously one has to..I was just wondering if anyone's specialist had suggested tumeric supplementation?  Tumeric is an anti inflammatory and I  have read it has been used for oral lichen planus..sorry don't know how to spell, which I believe is related to ffa...or offer is also present with FFA.?  Many thanks in advance..hang in there all.. hopefully a break through soon, salute h

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