Comment

Comment by illustr8r on October 16, 2018 at 6:35pm

@Afraid With my big flare I’d say I lost about 30%+ of my hair overall . The sides and temples have receded the most-2.5 cm. I grew back some hair on the sides and top so my bangs aren’t so stringy. This was the combo of Clobetasol and Castor Oil. I’m always losing hair-I see it in the sink and shower but it’s a lot less than it was when the flare was happening. 

Ive had a minor hiccup recently (red dots at my widows peak and itchiness on my neck) but it’s very mild compared to what as happening before. I feel relatively stable but sadly that can always change and no one knows why.

Comment by Afraid on October 16, 2018 at 2:37pm

Quick question to you lovely ladies...

anyone find overall thinning of hair and daily shedding with FFA in addition to loss at temples, side and front area?  Will it keep going until there isn’t anything left? 

Comment by AnnieMay on October 12, 2018 at 1:44pm

Hugs back to you illustr8r and everyone here. I do my best to stay positive and count my blessings as I know people struggling with more serious health issues. Everyday dealing with this is a challenge but there are some days when I feel so sad and down. No one understands that this is much bigger than a little hair loss so I'm thankful to have all of you. I think we all need a place to vent once in awhile. It's a beautiful day here so onward for now 

Comment by Afraid on October 12, 2018 at 9:09am

I can’t read rhs either 

Comment by BubbaLu on October 12, 2018 at 8:57am

Erika B,

is it just me?  I can’t read your post because the font is bigger and the right side of your post is cut off.   

Comment by illustr8r on October 12, 2018 at 2:52am

@AnnieMay (((hugs for you)))

I hold so much jealousy of the ladies I know who have managed to get through menopause with their hair intact. I hate the ads I see on Facebook advertising the hairstyles for Fall 2018. Yeah, not an option anymore. I know everyone at my age (54) have their own health challenges in some way but ours is so front facing, weird and misunderstood it adds to the frustration and sadness. I’m happy to know I can come here to vent and be mad/sad about THIS.

Night 2 of Clobetasol. Ugh.

Comment by AnnieMay on October 11, 2018 at 11:30pm

illustr8r- I'm right there with you. I'm going through a rough time too. When I can feel those strange sensations and itching it's devastating because I know what's to come. This has changed me and I hate it . . .

Comment by illustr8r on October 11, 2018 at 9:40pm

Yep, spending my waking hours focused on the top and sides of my head wondering if every itch or tingle is real or imagined. Is h*ll going to unleash again just as I’ve reluctantly accepted my short pixie self?

I swear...Stupid Disease!!! 

Comment by 2Dachshunds on October 11, 2018 at 10:48am

Hi Erika:  thanks so much for sharing this.  I will try it!!!

Maria

Comment by Afraid on October 11, 2018 at 10:04am

I think fickle is yet another coping mechanism and dealing with hair loss needs plenty of survival tips. 

Much the the same as illustrated & HBW..., I read site avidly but don’t post too much.  I’ve come to conclusion nothing really works but whilst trying a new intervention it gives you some hope that it might be successful.  I plucked up courage to go to a salon which I’ve been following on Instagram and whilst their main line of work is clearly hair extensions they have referred to some cases of alopecia.... it took me ages to summon courage to ring for an appointment, have been quite hopeful and happy... went in today... the person who I made appointment with doesn’t work on Thursdays!!  Do any hair ‘practitioners’ have any true understanding of how we feel?!  Crikey what doesn’t kill us makes us stronger! 

rant over 

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