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Comment by Wyobalance on May 27, 2018 at 3:10pm

AnnieMay, that is a most interesting website.  What if all hair enhancement companies went out of business.  What would TV and Movie personalities really look like.

For those bloggers that are not currently CARF members, here is a short pre-conference video they made:  https://www.youtube.com/watch?v=TtpN0jHKECI&feature=youtu.be&am...

Comment by AnnieMay on May 24, 2018 at 11:13pm

Hello lovely and courageous ladies, 

I have also been reading everyones posts and hope to hear more from those going to the conference. So many ups and downs with this awful disease and today was a down day for me. I try to stay positive but my confidence is at a low point. I saw this today and my hope is that a celebrity will bring more attention to alopecia. 

I know we all say this many times but just knowing you are all out there across the world sharing the same issues and thoughts that I am as we all navigate our way through this is just so huge to me. This is a condition that affects us all in so many ways. I would be lost without all of you so thank you. https://www.racked.com/2018/5/24/17386756/celebrities-jada-pinkett-...  

Comment by Afraid on May 23, 2018 at 1:34am

Hi, my dermatologist (who seems to know next to nothing about FFA and far less than our collective knowledge or my own research on the internet) has after 7 months, highly significant hair loss and 6 months of taking hydroxychloroquine and using clobestal has suggested doxycycline and steroid injections (although there is a two month waiting list) what are your thought? Has anyone had any success with either? Many thanks 

Comment by illustr8r on May 21, 2018 at 10:32pm

Hi @Anon at the moment I have a clear dividing line between good hair from the middle back and thinning hair from the middle forward. The nape of my hair feels/looks like it should with no thin spots...so far.

Comment by Anonymous on May 21, 2018 at 9:54am

Hi, Haven't posted much as of late, kind of bummed about my disappearing sides hair line. CurlyK Wondering what type of business applies hair pieces? Wig salons or type of specialty shop?. I find shops that do extensions, is this where you have yours done? For CurlyK and anyone else, How does the nape of neck look? 

Comment by illustr8r on May 16, 2018 at 11:28am

@CurlyK I think dr should consider now including the risk of FFA when women enter peri menopause. I started to have hair loss symptoms around age 48 that were dismissed and continued to be dismissed until age 53. The infamous “as we age” response. If it’s so important to get treated early then women need to know about it and dr need to be enlightened to take this sort of hair loss seriously.

Maybe you can ask if the medical powers that be could include this type of hairloss with the onset of menopause. It would expand awareness of the disease and I bet it’s not as rare as it seems unfortunately.

Comment by CurlyK on May 16, 2018 at 6:12am

Who else is going to the conference? 

I agree that $250 is a great price on a conference. I go to conferences for work that cost upwards or over $1,000 that don’t include meals. I jumped on this right away as I want to hear from doctors who really know this type of hair loss. 

Comment by Jess on May 16, 2018 at 2:19am

Hi, Lynn555. Here's an article about how FFA can have different presentations. There's the classic presentation with the frontal band at the top and sides of the hair line, there's the frontal band loss, along with diffuse loss), and another kind they call "pseudo fringe." I'm not sure if any of these match what you're experiencing, but I think it's important to note that FFA doesn't always look exactly the same for everyone. I've attached the pdf.Moreno-Arrones_et_al-2017-Classification%20System.pdf

Comment by Airam-FFA on May 16, 2018 at 1:40am

The Sunday also looks interesting - sessions on how to live with hair loss.

I look forward to hearing feedback from people who are attending. 

xOx

Comment by Wyobalance on May 15, 2018 at 11:30pm

Beez, yes $250 is a chunk for the CARF Conference, and more so for us that add air travel.  

However, most professional conferences cost $500+ and don't include all the meals.

The docs presenting at the CARF conference (I count at least 12) are donating their time, which is almost unheard of.

I'm hoping the conference will be worth the cost, and expect it will as many of the docs are FFA experts.

Here's the agenda again for those that may have missed it.

(this agenda does not show the Friday night 6/8 reception nor the Sunday after lunch Show & Share Social)

http://www.carfintl.org/_docs/Patient_Doctor_Conference_2018_Progra...

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