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Comment by Halfbakedwho on April 23, 2018 at 10:56am

Oh lovely some good news! I have some good Castor oil too - black Jamaican (sounds kind of like I could smoke it too... ; ) ).  

Today I broke down and called Dr. Famous Man, b/c what he prescribed in early March is really not having any effect (though why am I not surprised?) I just wonder if he has any other suggestions. Are you guys on the FB page too? I am reluctant to post there - anonymity issues... 

I am losing more hair as the weeks go by. If it would just stop here, I could deal. But it probably won't. So I love the idea of castor oil.

I am also debating whether to go back to my first doctor who prescribed A LOT of stuff, and wanted to do a biopsy (which makes me nervous). 

I read last night - and maybe you all have seen this too- that topical steroids do not work in 93% of cases (why that weird percentage??) but injections work better. That the drugs for malaria work a bit better, that Accutane works too (a bit). The last option I tried for acne many moons ago, and it made me feel soooo strange that I will not repeat the experience. So YES Castor oil : ). I think I will also begin to glue down the sides... can you recommend glue (again)? I think Minter has some ideas ; )

grosses bises,

Comment by illustr8r on April 23, 2018 at 2:48am

@Beez I put a drop each on the fingers of my left hand then transfer back some to my right. I massage it then along my hair line on the top and sides. I go back pretty far-even back to my “good” hair and behind my ears. I do this about 3 times so my scalp is covered in oil pretty evenly. Any excess I massage in under my eyes-i think this stuff softens wrinkles too! I’ll wipe the excess across my brows/lashes on the days I’m not using Latisse. I have to sleep on a towel and I use an old pillowcase because it will stain linens over time-but it does come out in the wash.

@Mel I had that peeling scalp thing too-around my hairline and about an inch in from there. Didn’t hurt or burn, just peeled. That’s when I started using castor oil. It cleared up after 1.5 weeks. I notice Clobetasol is drying and sometimes makes my head feel worse even though it’s supposed to ease inflammation. ?!?!

Comment by Mel on April 23, 2018 at 1:06am

I do castor oil in eyebrows and it helped though they are still thinner than before. I do on my hairline sometimes but mostly do coconut oil in the hair because it feels cooling. Has anyone else had peeling skin?? My forehead has been a mess for the past month. That’s how I got diagnosed initially. Went in for mysterious forehead “sunburn.” It is back and peeling a lot and the flaky perky is up on my hairline too. :((

Comment by Beez on April 23, 2018 at 12:29am

illustr8r.....this is good news and I'd like to try it too. Lots of positive stuff online about it. do you apply it just along the hairline in front? How much? Do you apply with fingers, q tip or an applicator? Do you rub it in?

Comment by illustr8r on April 22, 2018 at 2:10am

@MJ I use 100% Organic Castor Oil Cold Pressed by Cammile Q. I bought it on Amazon. I’ve never had a breakout or anything. I’m methodical with it-I use it every night.

Well, I do skip one night a weekend as a treat to limit my nightly routine. I miss going to bed like a normal person...Latisse M W F...castor oil every night...on and on.

Comment by MJ on April 21, 2018 at 11:16pm

Illustr8tr,

want type of castor oil do you use?  I got Black castor oil from tne health store.  I use it on my brows but got itchy when I tried it in my head.

Comment by ammie on April 21, 2018 at 10:44am

For those who have face papules: I still get hormonal acne and lately it has gotten worse so I bought a face wash with benzoyl peroxide and noticed that it helped with my face papules from FFA. Has anyone else had success with it? I would be curious to find out. I hope you all are well. 

Comment by Plf on April 21, 2018 at 9:23am

I have further appointment with my dermatologist next month, but as I haven't used any of the drugs she prescribed I wonder if there is any point keeping it?  Any further hair loss now and I think I will need a wig ..don't think I could be bothered with a ? Topper. Next on the agenda..wig homework

Comment by Minter on April 21, 2018 at 9:14am

@illust8r that is great news and I am very happy for you! :-)

I sometimes dab a little castor oil around my hairline at night, but I have to admit I don't use it religiously as I don't wash my hair every day and the oil makes it feel like I need to wash it every day :-/ but I do use it on my forearms/hands every night!  I also need to get my butt in gear and talk to my doctor about Latisse before it is too late-

Comment by Plf on April 20, 2018 at 7:55pm

Thanks Minter & illustr8r, some great suggestions, lovely to hear something positive...better start being more vigilant with the castor oil and look into the Latisse, have a good weekend 

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