Comment

Comment by Lynn555 on March 31, 2018 at 8:13pm

@Jess, that is very interesting. I wonder if Zinc oxide would be the same? Argh, I'm trying to find a safe sunscreen as I'm about to go to a tropical destination and I'm a very pale caucasion of irish/danish ancestory. 

Comment by Jess on March 31, 2018 at 8:07pm

My post to the forum is awaiting approval, so I thought I would add it in both place, since there is talk of it. A new article just came out that showed titanium nanoparticles in the hair shaft of a woman with FFA. Just a case study, nothing conclusive, but it points in the direction of sunscreen/cosmetics being a possible cause. I've attached the article PDF. Brunet-Possenti_et_al-2018-Journal_of_the_European_Academy_of_Derma...

Comment by Lynn555 on March 31, 2018 at 6:33pm

@pascal,

Is Zinc oxide safe to use? It is a physical sunscreen block. Thanks ! 

Comment by Mel on March 31, 2018 at 2:40pm

Water intake is supposed to also be important for autoimmune... my friend saw a documentary about that. Did you see national news about 90% of bottled water tested positive for plastic?? Filtered tap is safer. I now get the triple filtered water (35 cents a gallon) at my local food co-op and store it in 1 gallon glass to try to avoid ingesting phlalates 

Comment by Mel on March 31, 2018 at 2:36pm

On the podcast it said two good really good for skin/hair issues are oysters and pineapples (not together...ick). Buy fresh pineapple (when a center leaf can be easily pulled out and turn upside down infridge to distribute sugars.... the cut up. YUM!!!

i eat canned oysters... Crown Prince brand at Trader Joe’s...

Comment by Mel on March 31, 2018 at 2:33pm

Haha! I know what you mean... no fun (diet) and a lot of work. Remember lots of vegetables and diverse veg and fruit, including greens 1-2 times per day is the goal (veg 3+ times). I love Mickey Trescott’s recipes. And since Christmas I know use the Instant Pot and got the autoimmune cookbook for Instant Pot which helps speed things up... Some delicious recipes in minutes.... 

Comment by Anonymous on March 31, 2018 at 1:02pm

Minter, What powders do you use to disguise hair loss? I've read some use a brow powder? When the wind blows, my hair loss shows the most. 

Mel, I will certainly try the coconut oil with my diet, no gluten, no sugar, no dairy (no fun)  

Comment by Mel on March 31, 2018 at 12:58pm

Oops. Sorry for the duplicate comment!!

Comment by Mel on March 31, 2018 at 12:57pm

I agree with you all in not opting for pills, creams and shots from the doc. My derm recommended against “no treatment,” but I feel they are more harmful than good. I fight it with working hard to ingest tons of healthy food, doing what I can to get rid of stress, too.
I listened an autoimmune podcast about how the skin is the “last priority” organ in the body, meaning your body will work to heal everything else first and skin will be last to heal.
i think our condition is related to the skin and so as we work to heal our bodies it will take TIME for the hair to react.
when I was VERY strict with the diet and put coconut oil on my hairline every night after 3-5 months I had new growth in the bad areas! I was shocked. I’m going through a not great period now but I do think we can help our condition, even if a little, in other ways that are more natural.

Comment by Mel on March 31, 2018 at 12:56pm

I agree with you all in not opting for pills, creams and shots from the doc. My derm recommended against “no treatment,” but I feel they are more harmful than good. I fight it with working hard to ingest tons of healthy food, doing what I can to get rid of stress, too. 

I listened an autoimmune podcast about how the skin is the “last priority” organ in the body, meaning your body will work to heal everything else first and skin will be last to heal.

i think our condition is related to the skin and so as we work to heal our bodies it will take TIME for the hair to react.

when I was VERY strict with the diet and put coconut oil on my hairline every night after 3-5 months I had new growth in the bad areas! I was shocked. I’m going through a not great period now but I do think we can help our condition, even if a little, in other ways that are more natural.

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