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Comment by Lynn555 on March 17, 2018 at 7:33pm

20180209_092127.jpg    what do you guys think? Such embarassing pics. 

Comment by Lynn555 on March 17, 2018 at 7:32pm

And one more20180214_180048.jpg

Comment by Lynn555 on March 17, 2018 at 7:30pm

20180309_195345.jpg   here is a picture

Comment by Lynn555 on March 17, 2018 at 7:29pm

20180315_131635.jpg

Comment by Lynn555 on March 17, 2018 at 7:26pm

everyone, I'm reaching out in desperation as I don't know what is going on. I don't have a diagnosis at this time but I know my hair is thinning but I don't know why. About a month ago I noticed the hair above my ears was so thin and the hair that is remaining is wispy and lacks pigmentation.

My scalp is tingly, itchy, and looks scaly under the hair. Now the front of my hair is starting to thin and the hair looks wiry and doesn't lay down flat. My head is so tingly and sometimes in yhe shower the water hurts my scalp.

I can't see my doctor until March 29th but I did go to a walk in clinic. He said my scalp looked fine but prescribed betadine scalp lotion. And I had bloodtests done. This showed I am anemic whivh I ahve known for 4 years. I'm takimg supplements but they aren't working very well.

I don't notice much hair shedding. Maybe about 40 in the shower. When I brush my hair only about 10 come out. But my scalp feels terrible. Sore, tingly and the itchness is keeping me awake at night along with the stress.

I don't know what to do and I feel like no one believes me. But why would my acalp feel like this when it never has before. I am also under extra stress as my father has been diagnoised with terminal cancer. It seems this all started when I found out about him.

I also can see from pictures that my maternal Grandmother had frontal fibrosing alopecia. She also had celiacs disease. My other grandma had rheumatoid arthritis. I don't know if any of this is connected. The doctors thought I had lupus at one point but since had been ruled out.

Sorry for such a long post. I'm freaking out.

Visit Frontal Fibrosing Alopecia at:

Comment by illustr8r on March 17, 2018 at 4:33pm

@Adie Wow! You are making me reconsider my diet again! I’m so happy for you!

@Lynn555 I received your post in an email but I can’t find it on the Board here. I’m not sure why. Maybe copy/paste into a new discussion topic (link is above the comment wall) or post it into this section. Your story is very similar to others here. :(

Comment by Adie503 on March 17, 2018 at 4:04pm

The before picture was taken in July of last year. The other picture was taken earlier this month. 

Comment by Anonymous on March 17, 2018 at 4:00pm

Adie503, Awesome. How long between before and after pics?

Comment by Adie503 on March 17, 2018 at 3:41pm

 Ladies, I want to share with you what seems to be helping me. I changed my diet, I eat gluten free, low carb and low sugar. Before bed I take two probiotic. I try not to stress as stress causes shedding.  I'm attaching before and after pics.20180317_153452.png

20180313_211124.jpg

Comment by Lynn555 on March 17, 2018 at 3:20pm

I sent a message to the group and some ppl responded as my email informed me but where is the responses and my original message? I think I am confused how this group works!

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