Comment

Comment by Anonymous on March 16, 2018 at 5:22pm

Has anyone with high antibodies have them come within range? My endo says that once they are high, they are always high. Had mine tested and they are still high with the armour thyroid medication, but not as high (still above range). Thank you,

Comment by Anonymous on March 13, 2018 at 10:39pm

I would be interested also if anyone has used the NAC and L-tyrosine. If so, for how long to see results? The side effects concern me. Has anyone used copper peptides. It looks like something you put on your head to promote growth from thinning hair or dormant hair. 

Comment by Wyobalance on March 13, 2018 at 10:06pm

One woman and I initially lasered 1/2 of our head.  The redness around follicles on the lasered side resolved for both of us.  We both continue to laser.  Just laser, no meds for me and I still have hair loss.  Is the hair loss slower or the same if I didn't laser, who knows.

We recommend seeking a salon that uses lasers to laser 1/2 your head first to see if it makes a difference before spending $$ on one.

Comment by CurlyK on March 12, 2018 at 4:49pm

Anonymous, I did not use a laser comb but I tried the laser helmet. It does not work because the hair follicle has completely shut down. To my knowledge there is no cure for making the scarred hair follicles active ever again. Only treatments to help not lose what you still have. It is the most bizarre and disheartening condition for sure!

Comment by Anonymous on March 12, 2018 at 2:17pm

Hi, Really stressed out about the hair today. Has anyone tried a laser comb? If so, how did it work? Thank you.

Comment by Minter on March 10, 2018 at 8:46am

Yes, thank you Halfbakedwho - very interesting report. Enjoy your time in Paris (I was there several years ago, nice place to visit, but wouldn't want to live there)! ;-D

Comment by illustr8r on March 9, 2018 at 5:52pm

Thank you for the report HBW! I'm not glad that there are more cases of FFA but it's good that maybe finding a cure for it (or at least what causes it) more likely...some day. I also hope they discover it is reversible! 

We still need a Hollywood spokesperson to make it "real" to those who just don't get it.

Enjoy the rest of time in Paris! :)

Comment by Halfbakedwho on March 9, 2018 at 4:56pm

So I met with Dr. Bouhanna (Dr. Famous Man) yesterday. He changed my treatment - no more Minoxidil! He says he’s not convinced it does anything. Neither was I! 

But - stronger and different steroid to put on my scalp 2x day, and antibiotics - tetracycline - b/c there is some inflamation and « little red dots ». 

He was nice, he said he is seeing more and more of FFA - that he’d just had a man in on Wednesday... it’s getting more common. Isn’t that so weird...? It really makes me wonder what we’ve been exposed to - a sort of modern mutation, a modern plague? 

The good news - there was actually plenty of good news... 1. Thinking I was losing my hair at the nape was just a paranoid figment of my overactive anxious imagination. 2. I’m not losing my eyebrows. Again, Knock wood. 3. He does GRAFTS, people. He really does them. For real. He will only do it when the hair loss stops, then he will try a test implant, then if it takes, he does the whole thing. 

He has done conferences in the States, and is familiar with CARF. He had some big hair-follicle trophy on his desk from an award (iinvolving giant follicles I assume) from the States as well.

I told him I didn’t expect much and was feeling pessimistic and resigned, but he also said he is on the forefront of new treatments, including an anti-androgen that is currently being tested. 

Expensive visit though - 100 € with practically no reimbursement. But I’m not going to miss Minoxidil, which was also expensive and not covered. 

He wants me to take pictures of my scalp which I guess I’ll do. OK I will. I don’t want to. OK I will. Tomorrow. Or Sunday. 

Meanwhile, it’s nice to be in Paris, but we are glad we live in a more normal town ; ) 

Comment by Minter on March 8, 2018 at 8:46am

Good luck! Let us know how it turns out :-) 

Comment by Anonymous on March 7, 2018 at 1:45pm

Jess & Minter, I saw the same video, and I'm going to get crafty and try to make one myself. Waiting on human hair bangs, so we'll see. (Her's were synthetic). It's a great idea if it works.

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