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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024
Discussion Forum
Food Allergy Testing question
Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
CARF Conference 2018 Notes
Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Botox and FFA
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Trying a new approach with CBD oil...
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Comment Wall
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Comment by Brenda, IL US on April 22, 2014 at 9:21am
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Hi Jess. My derm said the follicles were inflamed almost to the crown. That was very hard to hear. The itching has started on the top of my head too. Alice i havent grown any hair on the sides. I have some new growth on top but not where its scarred. Its strange that i never had any inflammation on the sides or itching but the hair started falling out there first. Has anyone ordered a wig or head cover from tlc?
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Comment by Alice on April 22, 2014 at 8:20am
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Rogaine users - did you get any new growth on the sides, where the hair is very thin but the scalp does not look inflamed? I'm finally seeing new growth but it's all on top. Naturally, I'll take what I can get but was hoping to see some new hair on the sides.
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Comment by Debs on April 22, 2014 at 2:02am
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Mandy, hair transplants will reactivate FFA, regardless of whether our FFA is active or not this is not an option unfortunately. The 3 derms that attended the CARF conference in London November 2013 we quite clear on this.
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Comment by Liz on April 21, 2014 at 4:50pm
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Hi Jess. I can tell if mine is still active by doing a gentle hair pull. The hair will come out in the active area with no difficulty or pain.
x
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Comment by Mandy on April 21, 2014 at 4:14pm
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Hi Jess, my Derm looks a my scalp at every appointment under a small hand held micro scope... He explained that my FFA was active and that he could tell this because my scalp was pink and some of the hair follicles were enflamed... My FFA goes back about 2 inches and is in a small circle at the front of my head... At the moment I have lost about 1cm at the front headline and about 1.5 cm at each temple.
I am no longer taking medication but use a topical very occasionally if I get any itchiness! The belief is that you can not have a transplant until the FFA has burnt out.
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How can you tell if the FFA is still active? Brenda, you said your doc said your FFA went to the crown of your head. Is your scalp just red in appearance? What does active FFA look like? Has anyone known someone that has had a hair transplant?
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Wonderful comments and tips everyone! I am going to go find some nice headbands:) Happy Easter!
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Comment by Anne Louise on April 20, 2014 at 7:50am
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Happy Easter to everyone!
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Happy Easter xx
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Happy Easter to you all.
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