Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Paula uk on March 23, 2014 at 1:39pm
Hi all,
Celia- thankyou so much for lunch yesterday. It was great to have the opportunity to meet some other ladies from this site.best wishes to you all.
Px
Comment by Meme on March 23, 2014 at 12:13pm

Oh, sorry Celia, I'm always leaving little plastic boxes lying around. Please dont worry about sending them it will be a good excuse (not that I need one) to come to your barbecue in the summer.

I'm up for being cured!

meme x

Comment by Celia on March 23, 2014 at 9:19am

Thanks for the messages all of you - the pleasure was mine - just to have a chat and see you again and to meet new ladies.  You are all so positive and inspiring ! I have one pretty umbrella with butterflies on that was left here and also Meme's  little plastic pots - I will keep these for you unless you would like me to send them - otherwise......we'll have a barbecue late summer when the weather is balmy and we will all be cured by then.  Best wishes. x

Comment by Polly UK on March 23, 2014 at 9:06am
Thank you so much Celia for the excellent lunch and warm welcome to your lovely home. It was really good to meet up and share experiences and I hope we can keep in touch and meet up again. Following conversations yesterday about food allergies I have decided to cut out wheat and see if it helps alleviate some of my wierd symptoms.
Celia, the Turmeric Extra which contains Bromelain and also Curcumin, Piperine and Ginger and was recommended on here by Debs is by Veganicity from Health Plus online. It's £11.95 for 30 tablets.

Thanks again Celia and good wishes to all - Polly xxx
Comment by Pam on March 23, 2014 at 7:44am

Celia

Thank you so much for the lovely lunch yesterday - it was so kind of you to give us all a chance to get together, and I think we all had a really good time! It was so nice being able to have the opportunity to meet up with other members of the forum and talk freely about our condition - I hope we will all keep in touch, and meet up again! Best wishes to everyone,

Pam

Comment by Meme on March 23, 2014 at 5:48am

Celia

Thank you so much for your hospitality and inviting us to your lovely home. Everyone was so friendly, informative and supportive. It was well worth the journey.  Thanks again Celia.

meme x

Comment by Valerie on March 22, 2014 at 5:12pm
So lovely to meet you all, as a newbie you made me very welcome. I agree I think we all got something from our conversations. Thank you Celia for your hospitality and support. Hope to see you all again.
Comment by claire on March 22, 2014 at 1:13pm

Thank you Celia for your wonderful hospitality, greatly appreciated. It was also good to meet everyone and to share our experiences. All the best to everyone. Claire.

Comment by Celia on March 22, 2014 at 12:47pm

Ladies - thank you very much for making the journey today and for your great company.  I think we all gained from meeting up again and it was lovely to meet the 'newbies' ! Seriously I do value your friendship and the info and inspiration you bring to our albeit short get togethers.  Thanks to the knights in shining armour who delivered a couple of you to the door and also to the knight who waited at Paddington.  Hope you all got back safe and sound.  Stay in touch !

Comment by claire on March 21, 2014 at 1:34pm

Celia, forget the last request just checked on your area and see you have already given it to one of the other members-so I have all I need for tomorrow. Thanks.

 

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