Where acceptance is all there is!
Started by Leni. Last reply by Lang Bozic May 22. 10 Replies 0 Likes
I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue
Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies 1 Like
Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue
Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Comment
Sorry
Meant to say can I bring anything and what time do you want to kick us out. My very unsubtle way of asking if you are planning lunch. LOL
Just in case you are, please do not worry about me. I am a coeliac and lactose intolerant, in others words a complete nightmare to feed, so if you are panning anything I can bring my own, but I do not want to offend. It's just that I have learnt from experience that it is better to say up front than refuse hospitality on the day.
Husband is driving over with me (over protective, bless him) and then planning to go to your local pub (he's got it all worked out) to read his book. Think he's secretly looking forward to the peace and quiet.
meme x
Hi C
All information received, thank you. looking forward to meeting you and the other ladies.
meme x
Have sent you details Meme - hope you get them and please let me know if you need more info. x
Hi C
I hit the negative GP/Hospital wall about 10 years ago, LOL. Have given up with them. Find you lot more informative!
Can I ask, how will you let us know directions and time for Saturday.
Meme x
Oh ! Claire ! Thank you so much for making the effort ! Just get here safely and we all look forward to meeting you. You asked about what to bring - just yourself, please - you will have all made a great effort to get over here, and it will be worthwhile, I'm sure ! x
Hi Celia just to let you know I am working overnight on Friday and finish at about 9.15am. I am about 80 miles away and the route finder says it will take about one and half hours. Will therefore be will you all just as soon as i can. Looking forward to the get together. Claire.
Hi all, just wanted to let you know that I received a buy one / get one free e-mail offer from DermStore for SmartBrow eyebrow filler. I was able to get two for $24.95 + tax with free shipping. The promo code is BOGOBLON for the blonde color. I would imagine the other color codes are BOGO followed by the first four letters of the color description. I don't know if this offer is available for everyone, but it might be a good opportunity to try it out. By the way, I find the colors run a little dark, so the blonde color is perfect with my medium brown hair.
Am I still correct with this list for Sat ? Jules, Pam, Polly, Caro, Claire, Meme, Paula. Please, if there are any others who would care to join us, starting from10.30am - you are very welcome. A short way off the M40 - Junction 2. x
Anyone who still needs directions as to how to get here on Sat 22nd - please let me know - here - and I will e mail you on this site. Thank you !
Hi Pam - look forward to seeing you and other ladies. Let's say any time from 10.30 on. Julie has very kindly agreed to put an agenda together and she said she would keep checking for any items that may be suggested here. I would have done this, but my WORD has timed out........... I hope this doesn't sounds too formal but I just thought it might help for the future to have some kind of focus. I have half a mind to ask the GP to come along and meet us all, but, actually A - it's a weekend and B - he probably is not so interested. I know that Dr Harries in Salford attends a support group who meet regularly 'up there'. I wonder if Dr Cheung might have some interest , perhaps next time round in 'the summer'. Just a thought. x
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
© 2026 Created by Alopecia World.
Powered by
You need to be a member of Frontal Fibrosing Alopecia to add comments!