Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Meme on March 18, 2014 at 2:41pm

Hi C

All information received, thank you. looking forward to meeting you and the other ladies.

meme x

Comment by Celia on March 18, 2014 at 2:29pm

Have sent you details Meme - hope you get them and please let me know if you need more info. x

Comment by Meme on March 18, 2014 at 1:47pm

Hi C

I hit the negative GP/Hospital wall about 10 years ago, LOL. Have given up with them. Find you lot more informative!

Can I ask, how will you let us know directions and time for Saturday. 

 

Meme x 

Comment by Celia on March 17, 2014 at 2:48pm

Oh ! Claire !  Thank you so much for making the effort ! Just get here safely and we all look forward to meeting you.  You asked about what to bring - just yourself, please - you will have all made a great effort to get over here, and it will be worthwhile, I'm sure ! x

Comment by claire on March 17, 2014 at 2:39pm

Hi Celia just to let you know I am working overnight on Friday and finish at about 9.15am. I am about 80 miles away and the route finder says it will take about one and half hours. Will therefore be will you all just as soon as i can. Looking forward to the get together.  Claire.

Comment by Annie on March 17, 2014 at 1:50pm

Hi all, just wanted to let you know that I received a buy one / get one free e-mail offer from DermStore for SmartBrow eyebrow filler.  I was able to get two for $24.95 + tax with free shipping.  The promo code is BOGOBLON for the blonde color.  I would imagine the other color codes are BOGO followed by the first four letters of the color description.  I don't know if this offer is available for everyone, but it might be a good opportunity to try it out.  By the way, I find the colors run a little dark, so the blonde color is perfect with my medium brown hair.

Comment by Celia on March 17, 2014 at 1:38pm

Am I still correct with this list for Sat ? Jules, Pam, Polly, Caro, Claire, Meme, Paula. Please,  if there are any others who would care to join us, starting from10.30am - you are very welcome.  A short way off the M40 - Junction 2. x

Comment by Celia on March 17, 2014 at 10:03am

Anyone who still needs directions as to how to get here on Sat 22nd - please let me know - here -  and I will e mail you on this site.  Thank you !

Comment by Celia on March 17, 2014 at 10:01am

Hi Pam - look forward to seeing you and other ladies. Let's say any time from 10.30 on. Julie has very kindly agreed to put an agenda together and she said she would keep checking for any items that may be suggested here.  I would have done this, but my WORD has timed out...........  I hope this doesn't sounds too formal but I just thought it might help for the future to have some kind of focus.  I have half a mind to ask the GP to come along and meet us all, but,  actually A - it's a weekend and B - he probably is not so interested.   I know that Dr Harries in Salford attends a support group who meet regularly 'up there'.  I wonder if Dr Cheung might have some interest , perhaps next time round in 'the summer'.  Just a thought. x

Comment by Pam on March 17, 2014 at 9:21am

Celia I cant believe your GP would be negative about this forum -  my local GP who specialises in dermatology thinks that the forum is an excellent idea, both to share information, and also as a support network.

What time are we meeting on Saturday?

 

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