Comment

Comment by Alice on March 6, 2014 at 1:08pm

I have had good luck with using Elidel cream on my brows. On was nearly gone but now I just use a little eye shadow to fill in. The powder works better for me tan a pencil.

Comment by Annie on March 6, 2014 at 10:54am

I started using 5% Rogaine foam eyebrows as well as my head as soon as I was diagnosed with ffa almost a year ago.   My eyebrows have gotten thinner over the years, but my doctor said that they were not affected by the ffa yet.  My eyebrows and eyelashes have both gotten thicker as a result.  I don't use the Rogaine around my eyes, but my eyelashes have gotten so long that I now have a problem with my mascara leaving dots all around my eyes before it dries.  I did have an initial shed a couple weeks after starting Rogaine, but I never noticed losing any eyebrows. 

Comment by MJ on March 6, 2014 at 7:53am

Since I am still at the stage where I look at everyone's hair everywhere I go, I have two observations. First, I wonder how many cases od FFA are undiagnosed. I see a lot of thinning hairlines. Second, they must be making really natural looking wigs these days, because I never see anyone with what appears to be a wig.

Comment by claire on March 6, 2014 at 4:33am

Does anyone know if any of this stuff is available on prescription? I have seen some eyelash serum available on line and I am thinking of buying some. it all seems so hit and miss as to what to do. 

Comment by Jules UK on March 6, 2014 at 4:18am

I tried Regaine on my brows but it made no difference. I think it's helping slow down front hairloss. Can't be sure of course. I had my brows tattooed and they're wonderful!

Comment by MJ on March 5, 2014 at 8:50pm

My brows did not shed but I don't think my hair did either.

Comment by Sam on March 5, 2014 at 8:30pm

For those of you using rogaine on your brows, does that make them shed before they start growing, similar to what it does with the hair? My derm recommended it as well. He said they shouldn't shed but I was nervous to try. I may though and would be interested in hearing from anyone that has used rogaine on the brows. Thanks!!!

Comment by Maddy, California, U.S. on March 5, 2014 at 6:42pm

Hi Anne, Just wanted to pipe in here. I have used Latisse on my brows ever since I started to notice they were thinning...which was about 9 years ago. So far, I still have my brows, but I use it every night on both my brows and lashes. Ironically, people actually comment on how long my eyelashes are...they were almost non-existent before I started the Latisse. Also, your comment about having electrolysis years ago caught my attention. Similarly, my bangs used to be SO thick that I had to thin them out every week throughout my 20s and 30s...now I struggle to have enough hair to hide my receding hairline :(. Yeah, it's pretty depressing, but I am trying really hard not to let it run my life. I did buy a partial hairpiece and have it at the ready when I feel I just can't hide it any more. I'm having surgery tomorrow and am scared to death that the rest of my hair will fall out! Anyway, welcome and I'm sorry you got the FFA diagnosis, but this forum is a great help. Hang in there.

Comment by Anne Louise on March 5, 2014 at 5:36pm

Annie thanks for the tip! I will definitely look into the SmartBrow. I suppose at some point I will get the tattoo but I'm not ready yet and I will have to save up for it as well. I can't believe how much money I have spent in the past month alone on stuff related to my FFA . : (

Comment by Annie on March 5, 2014 at 10:43am

Anne, welcome to our group.  I'm sorry to hear about your diagnosis.  You will find lots of support & information here.   Regarding your eyebrows:  There's a product called SmartBrow that I learned about on this site.  You can find it online at DermStore.  It's pricey -- $29.99, but it does an unbelievable job thickening up your eyebrows.  It's kind of like mascara with a tiny brush to fill in bare areas and a mascara wand to thicken up your existing eyebrows.  It's also waterproof, which is perfect for swimming.  I find that the colors run a little dark, so you may want to order a shade lighter than normal.  (I have medium brown hair & order the blonde color.)  Shipping is free with this item, and you should be able to find a coupon code online for 20% off your first order.  Good luck.

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